@Jete @TML I commented on Jete’s other post & her imaging, I thought there looked a reasonable gap between the styloids & C1 processes, but I bow to your superior knowledge!
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In my country only I and doctors have permission to this, there is no way I can send it to you. 
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Alternatively you could screen record you scrolling through the full length of the axial view. That way I can see everything. But you’d have to do it slowly and I’m unsure how long of videos can be uploaded here.
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Yes, I will try to do that.
Sorry, the file you are trying to upload is not authorized (authorized extensions: jpg, jpeg, png, gif, xlsx, xls, pdf, docx, doc, xls).
I can not send…
Try putting it into a google drive and then send me the url link to drive in a private message?
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Thanks. Is there any information on this site on how to control the symptoms of IJV?
@Jete sent me a video of them scrolling through their axial view. A couple things. I can’t comment too much on the vascular side of things since there is no contrast, but we can be fairly sure that there is some IJV compression happening between styloids and C1.
Axial view revealed a couple things. One patch of calcified stylohyoid ligament on the right, and one patch on the left. They were hard to catch on the 3D model because they are tiny, but definitely enough to cause caos depending on which nerves/vascular structures are nearby.
Second, both greater horns are really close to the spine. Not sure if they sre pressing into anything, but important to note.
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@Jete in my opinion after seeing your imaging, I think you’d benefit from bilateral styloidectomy where they remove the full lengths of your stylohyoid ligaments as well. The calcification pockets can get worse if not dealt with.
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If I gave you a link to my Google drive, would you look at my images? If so, how do I send you a private message?
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@jrhode2873 if you click on my “T” icon attached to this message it will give you show you my profile and you can click “message” under my profile picture (which is just a “T” right now).
It would be best if you can screen record yourself slowly scrolling through the full length of the axial view of your imaging.
Alternatively you put all you DICOM files into a google drive and I can download your imaging myself and go through it. A screen record of scrolling through the axial view should suffice though.
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@jrhode2873 - The best information is to sleep w/ your head/shoulders elevated at night (a wedge pillow can be very helpful w/ this), ice your neck for 15 min. several times a day w/ a thin cloth between skin & ice pack to prevent ice burns & if you can get an Rx to Plavix, Brillinta or Xarelto which are blood thinners, taking a blood thinner has helped a number of our members while they waited for surgery. If there are certain head positions that make your symptoms worse, try to refrain from putting your head in those positions.
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Thank you so much for your time and knowledge. Amazing. 
Definitely I will talk to doctors and will admit in conversation this support group.
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What if you’re a side sleeper? Head elevation would make it worse, no?
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@jrhode2873 - Head elevation no matter what position you sleep in should help relieve your symptoms. If you get a wedge pillow, use your regular bed pillow on top of it to support your neck & shoulders when sleeping on your side otherwise, just use several bed pillows to give your head some elevation & support your neck & shoulder at night or when napping.
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I was able to go through @jrhode2873 ‘s imaging. See attached annotated images.
Styloids are very short, followed by a small section of normal stylohyoid ligament, followed by calcified stylohyoid ligament around the level of C1 transverse process.
Axial view shows that the pockets of calcification are not in direct contact with the IJVs at any point, but that is not to say that they don’t contact them with certain head movements (e.g., looking down).
Right IJV in particular is pretty compressed against the C1 transverse process. It’s possible that the right vagus nerve is also compressed. Neither IJVs are compressed at any other point further down.
Hyoid bone greater and lesser horns look normal to me. I don’t see any compression or contact of any bony structures with any carotids. Right IJV seems to be the bigger and maybe only issue going on.
You also have bilateral complete/full arcuate foramen. This is when bone forms around the vertebral arteries on C1. This is considered a normal human variant and very rarely causes any problems whatsoever. Just thought I’d note it.
@Jete - I can see your left greater hyoid horn appears to be very pointed. That may be true for the right as well, though they often aren’t symmetrical. Having a pointed a tip could make that greater horn more of a problem for you as well.
You asked earlier where we get our knowledge here. @Jules & I have been on this form since 2014 when we were each diagnosed w/ ES. She’s been a moderator since 2015 & I’ve been since 2017. We’ve learned a lot over the years we’ve been here - from our own experiences w/ ES, from our members who have taught us what we’re seeing in the various types of scans that are posted, plus doing some of our own internet research & reading research articles to help better inform ourselves so we can be more helpful for our members.
We’re very thankful to have this opportunity to help guide people, who are suffering as we did, to the diagnosis(es) & help they need for recovery.
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You have done amazing job and have gone through long journey. 
Thank you for your support.
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@jrhode2873 I think maybe a C1 shave would be beneficial on your right side. We know for sure your IJV is crammed against your C1, and less confident that the stylohyoid ligament calcification is causing any symptoms (it likely is though). So I think it might be best to meet with an ES surgeon who also does C1 shaves.