I have many questions. I’ve been diagnosed with eagle synd., however sometimes for a entire year or more I have no symptoms and suddenly it starts. Have had this since 1995. Can’t understand why there would be such long breaks with no symptoms if this bone is there all the time?
Does anyone else have long bouts like this?
Secondly I’m considering surgery - does anyone know any good surgeon in Miami Fla. Who has done a few of these surgeries?
Thanks look forward to hearing fr you
Hello Missy,
I was diagnosed with eagle syndrome several years ago and had my surgery with Dr. Arnold of the university of Miami Hospital. He is a cancer specialist of the neck and head. I was referred to him by a pain specialist. I have eagle syndrome on both sides and also have found I have TMJ. It could be that you have eagle syndrome and some other issue like TMJ or that you do something to irritate the trigeminal nerve and then your pain starts. I kept a journal to help me determine what started my pain and what stops my pain. I also suffer from extremely tight muscles in my neck and face.
If you have any specific questions I can help you with pleas end me a message. I live in palm beach county
Ann
I had initial symptoms of pain in my jaw for a year or so, then got diagnosed. Looking back, I'd had some of the symptoms mildly for quite a while before that, like earaches, sore throat one side etc., before the pain in my jaw started.The first consultant I saw said symptoms would have to be really severe before he would advise surgery, so mine weren't. For the next 9 months they seemed not too bad, definitely bearable and some days barely there, but then through August last year everything worsened and this has continued since then. Strange! Other than doing a lot of cycling- which I've now had to give up- I couldn't think of anything I had done to worsen it. I've now been referred to a consultant who has done surgeries before, so am waiting for Ct results....
Hope you can find a good doc soon.
H
Thank you Ann and Jules, my symptoms seem a bit diff to yours, I get a burning pain rafiating from the back if my throat going up my ear If I don’t swallow and kind of hold by breath for a second, whatever is touching the nerve releases it and the pain goes - strangely drinking water is my worst trigger, eTing isn’t as bad? Does any of you find this? My bite is also off as I hear clicking sounds when I chew and my dentist swears I have TMJ and it’s nothing to do with eagle syndrome?I do t care which it is just wish I could figure it out and deal with it.
Thanks for Dr Arnold’s name I’ll check him out on google.
Missy
cite>ann said:
Hello Missy,
I was diagnosed with eagle syndrome several years ago and had my surgery with Dr. Arnold of the university of Miami Hospital. He is a cancer specialist of the neck and head. I was referred to him by a pain specialist. I have eagle syndrome on both sides and also have found I have TMJ. It could be that you have eagle syndrome and some other issue like TMJ or
Ann
Hi Missy,
I also have BAD TMJ. It's bad enough that sometimes my jaw gets stuck open when I yawn, & I have to smack one side of my jaw w/ my hand to get it to release. I found a cranial chiropractor in my area who I see periodically, & he has done wonders for me. I also saw an oral surgeon who said surgery isn't an option but gave me the name of a physical therapist who specializes in TMJ. Additionally my dentist has me wearing a nightguard over my lower teeth at night to help me not clench my jaw when I sleep. Though it hasn't stopped the clenching, it is saving my teeth from damage from the pressure of the clenching. I never went to see the physical therapist because I was eventually diagnosed w/ ES which is my bigger problem at the moment & may be a contributor to my TMJ (which came first, the chicken or the egg?). Unfortunately, I live in CA & can't recommend anyone in your area.
I do get grinding & popping sounds from my jaw when I chew, ear pain, headaches, etc. but these are also symptoms of ES. Before I knew I had ES, my TMJ symptoms would come & go. They were always worse when I was going through a stressful period in my life.
Hopefully I've given you some ideas as to possible resources in your community which you can look for to help you.
:)
Isaiah 40:31
Hello Isaiah,
I wanted to say if I was you I would try to relieve the stress and inflammation in your tmj joints. Any stress causes inflammation and plays off the other issue. Good posture, not chewing gum, not biting into apples or chewy foods have helped me. I also do therapy weekly for my tmj joints and neck and back. All of this helps reduce my pain.
Good luck
ann
Deleted
Hi ann,
How did your surgery go was it suvpccessful and did the symptoms go away? Thanks for Dr Arnold’s name I will check him out
Missy said:
H
Thank you Ann and Jules, my symptoms seem a bit diff to yours, I get a burning pain rafiating from the back if my throat going up my ear If I don’t swallow and kind of hold by breath for a second, whatever is touching the nerve releases it and the pain goes - strangely drinking water is my worst trigger, eTing isn’t as bad? Does any of you find this? My bite is also off as I hear clicking sounds when I chew and my dentist swears I have TMJ and it’s nothing to do with eagle syndrome?I do t care which it is just wish I could figure it out and deal with it.
Thanks for Dr Arnold’s name I’ll check him out on google.
Missy
cite>ann said:Hello Missy,
I was diagnosed with eagle syndrome several years ago and had my surgery with Dr. Arnold of the university of Miami Hospital. He is a cancer specialist of the neck and head. I was referred to him by a pain specialist. I have eagle syndrome on both sides and also have found I have TMJ. It could be that you have eagle syndrome and some other issue like TMJ or
Ann
Hello Missy,
My symptoms were extremely bad prior to surgery, my pain was what I called a level 15, off the charts. The majority of my pain was in my teeth on my left side. My neck and upper back seems to be involved in the whole pain aspect for me and I continue to deal with pain and restrictions but I believe the surgery saved my life. Dr. Arnold was very good at listening to me prior to the surgery and worked with me on a plan for after the surgery.
Good luck
Ann