Hello,
I just wanted to let everyone know that I’m heading to Connecticut tomorrow for my surgery that is scheduled for Monday morning with Dr. Costantino & Dr. Tobias. I appreciate all of the information that everyone has provided so far. It has been very helpful to be able to read about the experiences that other people have had while on this journey to healing and this forum was so beneficial in helping me to locate doctors who are familiar with Eagle syndrome, especially the vascular type. I will post an update as soon as I am able to just to let everyone know how the surgery went & how recovery is going.
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Thank you for the update, @vap. I have your surgery on my calendar for tomorrow & will be praying for everything to go perfectly & for recovery to be seamless.
Wishing the best possible outcome! Take good care of yourself.
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Best wishes for tomorrow, hope that it all goes well, praying for a successful outcome 
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Thank you all so much for your support and prayers!
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How did your surgery and recovery go?
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Hi @Johnny99. I did update on another post about my surgery and recovery. I’m not sure how you go about finding that thread, but if you know, it is on the forum. My surgery went fine with Dr. C and Dr. Tobias. It took about twice as long as they thought it would because they found out that my Spinal Accessory Nerve was tangled up with my IJV once they were doing the surgery, as well as the other things we knew before surgery. I only had surgery on one side even i had compression on both sides. I’m sorry that you’re having a problem with your insurance. I didn’t have a problem until about a week before surgery & then BCBS started giving me an issue. There is a man at Dr. C’s office named Jules who works with the insurance companies & he was VERY helpful in getting all of that cleared up for me. It might be worth talking to him if you haven’t already. My recovery is going fine, although I still have numb areas from the surgery and first bite syndrome that continues to lessen. I just had a carotid ultrasound and the IJV that was decompressed is still open so that is good news. My symptoms are better, although not completely gone. I’m hoping that things will continue to improve even though it’s been over a year since I had the surgery. How are you feeling?
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I’m feeling pretty good. I think the diamox works pretty well- something that Dr Tobias said is a very good sign that the surgery should relieve my brain fog. I’m a teacher, so by the end of the day or when I’ve taught more than one class, I feel foggy.
I worked with Jules and he is very helpful. Monday is tentative- I actually haven’t heard from the office. The hospital has been sending me texts and I have my POP appointment today. (I’m only an hour from Stamford). I’m very nervous about the surgery. The neurosurgeon that discovered the compression in an angiogram did another when my papilladema developed this summer and said the pressure is not that great- the highest measurement was 16. So hearing about all the complications gives me pause.
Thanks for your reply.
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It’s good that the diamox is helping! Hope you hear soon 
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