Hello everyone. I just joined this group and this is my first post about my daughter who has Eagles. My adult daughters right jugular vein developed a blood clot after a chiropractor adjustment. A chiropractor adjustment trapped her right jugular between her styloid process and C1, which narrowed her jugular, created blood congestion and thus a blood clot formed in the narrowed space. She developed terrible symptoms which landed her in the hospital. Tests were run and the clot was discovered. She was prescribed Eliquis for the blood clot. She was shuffled around the medical system with no diagnosis for months. It would be six months later before a surgeon finally told her that she had something called Vascular Eagles and that it was caused by the chiropractor adjustment. The Arizona neurosurgeon, who gave her the diagnosis of Eagles, shrugged and told her to just live with it. My daughter and I do not accept that. We have found another Arizona surgeon, Dr. Nakaji, and we hope that after he reviews her medical records that he will agree to meet with her. Has anyone here had surgery done by this surgeon? If so, was the surgery successful without nerve damage? My daughter still has scary symptoms. Fortunately she can still work but it is not easy for her. She has to move carefully to avoid making her symptoms worse including getting dizzy. She suffers with daily head pressure and daily headaches and sometimes her vision blurs. I fear that the constant back pressure in her head will cause a stroke, deafness or blindness. This is no way to live if something can be done. My daughter has been living a nightmare and we have felt dismissed and alone until we found this wonderful group. I look forward to learning more from the group and I will continue to share my daughters journey with Vascular Eagles. I hope that her story will help others. I pray that God will comfort and bless all who are dealing with this horrific life changing condition.
@WorriedMom Just telling you “Welcome” I am a french woman who doesn’t speak english. That forum is fantastic and you will find great help! About me I also try to find the good way to have surgery but in france very very hard to find !
Hi Mom, I’m in the process with Dr. Nakaji now, likely scheduling surgery in mid Feb (hope to confirm surgery date on Monday). You’re lucky to be in AZ, from what I can tell, Dr. Nakaji is as good as it gets with Eagles.
You’ll also want to look up Dr. Mehta at Vascular Interventional Partners in Scottsdale. He does pre-screening for Dr. Nakaji (Dr. Nakaji requires this before he’ll do surgery), so see if you can get your daughter an appointment there asap as his schedule can be pretty full.
Thank you for the warm welcome. I hope that you find the medical care that you need in France. Take care and best of luck to you.
also there’s a Dr. that works with Mehta and Nakaji on non-surgical cases. - Jill Rau
Thank you so much for responding. I am glad to know that you are so pleased with Dr Nakaji. Thank you for the other helpful info. I look forward to following your journey.
Thanks for that info. How is Eagles treated non surgically? I wonder if anyone with a narrowed blood vessel has ever been treated successfully by manipulating C1 away from the jugular. If so, I wonder what kind of specialist does it. A chiropractor caused my daughters Eagles. Maybe a DO or MD credentialed for upper cervical manipulation could do it?
@WorriedMom - No one on our forum has been successfully treated for vES non-surgically. Even those who have tried via an atlas orthogonal chiropractor or DO have only gotten temporary relief because adjustments don’t retain permanently. It becomes a game of moderating symptoms via medication if surgery is denied. The answer to denial for surgery is to continue to search for a doctor who recognizes the severity of the problem & is willing to help fix it. Because your daughter has/had a clot in her IJV, I’d be surprised if Dr. Nakaji would turn her away.
Wendy,
Thank you for answering the question regarding non surgical treatment. It is such helpful information. Your knowledge is so valuable to me. What a blessing. I am encouraged about Dr. Nakaji. I so hope that you are right and that he will likely accept her. 
Claire
Hi @WorriedMom , & welcome!
I’m sorry that your daughter is going through this, & for you seeing & helping her, that’s hard for a Mum!
We’ve had lots of members who have seen Dr Nakaji, he’s one of the experts with vascular ES. You can use the search function to look up ‘surgery with Dr Nakaji’ if you want, there’s links & info in this discussion too:
Anyone here recently have surgery with Dr. Nakaji? - General - Living with Eagle
It can be a journey with the VES surgery if your daughter is accepted by Dr Nakaji, it might not be an instant cure as there can be swelling afterwards, and also the brain can take a while to adjust to less compression on the vein. We have had some members who’ve needed ballooning to re-open the vein, and very occasionally stents might be needed, so be prepared for that. But as @Isaiah_40_31 says, C1 manipulations are usually only temporary, and can be risky too, as you’ve found out.
We also have several mum members going through the same situation as you at the moment, maybe you could all connect & support each other through this group:
Latest Caregivers topics - Living with Eagle
And hopefully some of the others Mum’s will see your discussion here too!
Praying your daughter can get some help soon 
Thank for your kind words. Yes, it is quite scary for a mom. I appreciate you taking the time to write and include such helpful information. The support in this group is wonderful. It is a blessing to not feel alone anymore.