Hi @WorriedMom , & welcome!
I’m sorry that your daughter is going through this, & for you seeing & helping her, that’s hard for a Mum!
We’ve had lots of members who have seen Dr Nakaji, he’s one of the experts with vascular ES. You can use the search function to look up ‘surgery with Dr Nakaji’ if you want, there’s links & info in this discussion too:
Anyone here recently have surgery with Dr. Nakaji? - General - Living with Eagle
It can be a journey with the VES surgery if your daughter is accepted by Dr Nakaji, it might not be an instant cure as there can be swelling afterwards, and also the brain can take a while to adjust to less compression on the vein. We have had some members who’ve needed ballooning to re-open the vein, and very occasionally stents might be needed, so be prepared for that. But as @Isaiah_40_31 says, C1 manipulations are usually only temporary, and can be risky too, as you’ve found out.
We also have several mum members going through the same situation as you at the moment, maybe you could all connect & support each other through this group:
Latest Caregivers topics - Living with Eagle
And hopefully some of the others Mum’s will see your discussion here too!
Praying your daughter can get some help soon 
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