I did just reply with a private message, but I’ll say it again for others’ benefit too!
It’s common for people with IJV compression to have intracranial hypertension, & then if there’s any weak spots for this to cause a CSF leak, then causing Intracranial Hypotension, then the pressure gradually builds again to hypertension, & people can often have a constant cycle between the two! If there is IJV compression by the styloids, then it’s important to have this addressed first before patching leaks as they’d probably fail again…
Ideally a CT scan of the head and neck with contrast especially timed for showing the veins is needed, (CT Venogram) and hopefully this would show if there’s compression. I don’t know if your neuro will be willing to send you for this, or whether they would refer you to Mr Axon ideally- we suggest that members print off research articles to show their doctors is they skeptical (although this doesn’t always go down well!), this paper might be helpful as it is written by Mr Axon & describes exactly what you’re experiencing by the sound of it:
Dr. Higgins & Dr. Axon : Spontaneous Intracranial Hypotension Complicated by Subdural Effusions Treated by Surgical Relief of Cranial Venous Outflow Obstruction - General / Research Papers - Living with Eagle
There are loads of papers about IJV compression in the Research Papers category, but here’s a couple of other articles/ info video you might find interesting:
A Review Of IJV Compression by Dr Aghayev - General / Research Papers - Living with Eagle
Interesting Article by Kjetil Larsen; AAI/ CCI/ Jugular Outlet Obstruction - General / Research Papers - Living with Eagle
I would think that normally a neurologist would be the best person to treat IH, but obviously if there is a cause for it, as opposed to being idiopathic, then hopefully they would refer you on.
As tonsillectomy is a cause of ES, maybe that’s why they asked you about it?
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