Here at ER now - observation

I’m sorry that you’re in so much pain & can’t join in with Thanksgiving celebrations, that’s rough :hugs:
The nerve pain medications vary so much with what side effects people get and how effective they are, so it really is trial & error and perhaps having to take different ones. Carbamazepine can be effective, but that often causes dopey-ness too- I guess you have to decide whether you want to stop the pain & be a bit of a zombie instead, it’s a rotten choice, & unfortunately there is no easy answer or quick fix… Amitriptyline works for me, and I’m very lucky that the low dose I need doesn’t give me side effects. There’s a list of other meds in the Newbies Guide Section, here’s a link:
ES Information- Treatment: Pain Relief, Medications and Alternative Therapies - Welcome / Newbies Guide to Eagle Syndrome - Living with Eagle
There’s some other suggestions for pain relief in there too, like lidocaine patches or gel. I’ve don’t know much about the other meds you mention, the Methocarbamol is a muscle relaxant so won’t actually help with nerve pain, but might help with the muscle tightness you get… Hydrocodone-Acetamin being an opioid often isn’t that effective with ES pain…
It’s unusual for ES to cause pins & needles in your legs, although some members have had symptoms like that. It could be that your posture is altered because of the pain you’re in, & this could be causing tense muscles which trap nerves? Or whether you have any other issues with your spine, but it sounds like the clips are the priority to fix for now. It could be that you’re laying awkwardly at night? But again, that’s a very individual thing & trial & error again to find a better position, and it may be that there isn’t the ideal one for you.
It could be that your vagus nerve is irritated and that could affect the sensation you’re getting with your breathing, but it’s good that this is has been checked & all good. It’s understandable that the PTs won’t do anything with your neck, & that’s probably for the best, as if the clips are causing your issues any massage or stretches etc could well aggravate things even more.
We don’t have any recipes on here I don’t think, there is lots of info about anti-inflammatory diets online. I think it’s best really to stick to fresh ingredients as much as possible, avoid processed foods and too much sugar. The keto diet (very low carb) can be helpful with inflammation. Can you eat okay, chewing & swallowing? Does the pain make you feel sick at all?
I can see what you mean about the shape of your neck, I’ve not seen that before, I’m sorry that you’re having to try & deal with all this. The best encouragement we can give you is to hang in there, it’s good that you’ve been able to speak to Dr Osborne, and praying that he can help you. How was today’s appointment? Prayers & virtual hugs for you :hugs: :folded_hands:

1 Like