@baldcaldwell not the compression but the blood flow and the pressure gradient. Ultrasound can also measure the blood flow & resistance in the narrowed section but this depends on the technical expertise of the technologist performing it since accurate measurements depends on the angle of the US probe, head & neck position and the area of interest. So depending on these factors, the result could be easily skewed positively or negatively. That is why vascular surgeons prefer the catheter angiogram/venogram since it is done by interventional radiologists along with vascular surgeons. it also measures the pressure of the narrowed area bit more accurately. Also, it is generally difficulty for ultrasound to view bony areas at the base of the neck since sound-wave does not appear to penetrate bone very well. Bottom line is, you can have compression, but it might not be pathogenic (disease causing) if it does not affect the pressure and the blood flow.
@Dontgiveup I feel your pain but this too will pass. Nothing stays the same. I know how it feels but you need to focus on how you can mitigate the pain and reduce the head pressure. There are number of good suggestions in this site to lessen the pain and manage ES. For example @TheDude posted a number of tips here (Small tricks to help Eagles with IJV compression - #4 by TheDude). I would also add one thing that I found important. If you take multivitamins, make sure to take less Vitamin A or no Vitamin A at all as too much Vitamin A is associated with increase of intercranial pressure (Raised Intracranial Pressure - Secondary to Vitamin Overdose). Sleep on wedge pillow. Do not lie down alot since lying down uses the Jugular Vein as draining which in your case is impaired. lie on an incline like sofa chair if you want to relax a bit. When upright, our collateral veins come to the rescue and do the draining. Do anything that lowers your stress level as well. Any relaxation technique would do.
@KoolDude Thank you again for your help. It’s so hard to find a comfortable position where I feel even slightly better. I find I have to lay down quite a lot which actually helps. I can’t lay on my back because the pressure pools in the base of my skull. I have to lay on my left or right side which helps somewhat.
Sometimes a little bit of movement helps too. Though it’s short lived since I have no energy. I think it’s the instability that makes everything so difficult. I take fish oil to help thin my blood. I don’t take a multivitamin so I’m not getting any additional vitamin a. Thanks for all of the tips. I will check out TheDudes post
Hi baldcaldwell,
@KoolDude gave you a far better answer than I could have. I hope you found it helpful. Since you do have vascular ES symptoms, I suspect your flow velocities would reflect that your IJV compression is “pathogenic” but having the additional testing done would help to secure that diagnosis. The critical thing is that the testing be done w/ your head in various positions. Too often the tests are done w/ the head in a neutral position & very often that doesn’t provide any helpful info.
Thank you, KoolDude for your helpful information both for @baldcaldwell & @Dontgiveup!
Yes, ES can really make you as ill as you feel, especially when you have vascular ES. We have a number of members who’ve recently been feeling like you are. Getting the styloid(s) removed can make a huge difference, but the positive effects are often not immediate taking a few weeks to a few months to develop.
So sorry that you’re feeling so rough with this, as Isaiah says others have felt so too…I’m pleased that you’ve found someone who has listened to you & can hopefully get you moved up the list a bit quicker. I hope that there might be some helpful tips from TheDude’s post…Sending you a hug and thinking of you