Hello everyone! I am new to the group and newly diagnosed. I see Dr. Hackman in January at UNC.
I have a few questions/thoughts (okay, a lot):
I have severe TMJD (diagnosed finally 8 months ago) and currently in treatment (appliance therapy, etc). Both meniscus discs are dislocated and the left is torn, I have spurring etc. All of this confirmed via numerous imaging (MRI, CT Scans, etc).
I also have migraines and occipital neuralgia after one debilitating cervical chiropractic adjustment 3 years ago. The occipital neuralgia was diagnosed via nerve blocks and botox.
About two years ago, I had a spinal tap which led to a CSF leak and subsequent blood patch. I had follow up imaging to ensure the leak was “fixed”.
I developed really odd symptoms over a year and a half ago and they seem to be getting worse.
I have severe neck pain and pressure at the base of my skull, neck stiffness, stabbing pain in my head when I lay down on my side, feeling like something is catching in my neck, dizziness or lack of air when I turn my head a certain way, a feeling of something catching in my throat and pain behind my ears, severe muscle soreness and tenderness in my temporalis and occipital areas. I sometimes feel like I can’t breathe properly even though my oxy levels are fine. My voice gets tired easily if I talk too much.
I cannot look down to write, type, read, cook, complete daily tasks without trigging these symptoms.
One of my odd symptoms is SEVERE pain, stiffness and muscle spasms in my neck if I use my right arm to do anything. The pain spreads into my neck and back of the right side of my head. My shoulder and arms are fine. Washing my hair is almost impossible.
There are no issues with my cervical spine, etc.
I’m finding it difficult to pinpoint what is causing my symptoms. I know everyone is different but I wondered if you could share your experiences and input with me?
What kind of pain do you experience?
What are your symptoms like?
Does anyone else have TMJD?