Wow, your IJV looks incredibly compressed in the first image you’ve posted! It’s not surprising that you’re feeling so rough…The vagus nerve won’t show on imaging, but as it lies inside the carotid sheath with the IJV and carotid artery, given that severe compression it could well be involved as well. We had a really interesting discussion about the effects of vagus nerve compression in this discussion which you might find helpful:
Successful Surgery for severe Vagus Nerve Compression - General / Eagle Syndrome Stories - Living with Eagle
@Chrickychricky has posted an interesting link about POTS which might be helpful:
The Science Behind the Symptoms is a great podcast. Attaching a link to an episode on POTS - General - Living with Eagle
And @Snapple2020 mentioned Dr Hacker in MO as being very knowledgeable about pelvic compressions I believe… @Snapple2020 is pretty expert about EDS so hopefully she can give you info about doctors if you need it!
Obviously you have alot going on, we’ve had discussions about MCAS which you could search for, & have you been tested for Sjogrens Syndrome? As you mentioned dry eyes?
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