Hi its adele here, i have 1 day left until i get my results but this last week has been a killer 
1.a couple of days ago i thought i could feel a thin bone in my throat then thought it had all broken up and it was going under my chin and on my oesophagus but now im feeling like my oesophagus is slowly moving down from the top where it meets my throat then today i feel like someone is strangling me slowly and everytime i swollow my oesophagus is going further down then a click in my ear then a thud in my throat 
i literally think im dying all the time,I just keep bursting out crying all the time… i think im loosing the will to live:cry: i just hope to god that my ENT specialist finds something because i dont think iv got the strength to go and fight with different specialist, its getting tougher as the days roll on.
Iv got a feeling that its all nerves the clicking and popping in my ears but any clues of what the oesophagus feeling could be please im greatful for your input.
I’m so sorry you’re having such a rough time right now. Waiting can be hard under the best of circumstances. Sometimes when we get the diagnosis it can be a really big weight off our shoulders. Big hugs to you
Sharon from modsupport
I’m sorry that you’re having all these weird symptoms and are struggling with the wait! 
The glossopharyngeal nerve is commonly affected, and it can give feelings of a lump or poking in the throat, choking, and pain, and the Vagus nerve can too, so more than likely the sensation of strangling and weird swallowing is just nerves being irritated. Others have had clicking and popping too, which can be calcified ligaments and the hyoid bone occasionally if the processes are elongated. If you can, have a read about the common symptoms and what can cause them and hopefully this’ll put your mind at rest that it is irritated nerves causing this sensation with your oesophagus:
ES Information: Common Symptoms And Possible Explanations For Them - Welcome / Newbies Guide to Eagle Syndrome - Living with Eagle
When you get your results, I would ask if he can have a look at your styloids, whether the ligaments are calcified, and whether the hyoid bones look elongated, so you get the whole picture.
Thinking of you, and hope you do get answers tomorrow 
Thank you both for the love and suport, the pain has really ramped up today in particular especially when swallowing, i really do hope he sees the problem tomorrow 
How has your appointment gone?
I’m so sorry your symptoms have become so bad, @Adele007. ES symptoms do that - get worse then calm down a bit then get worse again. It’s a frustrating cycle. I hope today was a better day & that your appt. went well & your doctor was able to give you a diagnosis.
Hi everyone x i had my follow up appointment yesterday, but the report wasn’t ready but he showed me my ct scan and yes i do have ealges syndrome but haven’t got any of the details of the length and thickness, i know that there calcified because i feel the texture in my mouth, iv got a phone appointment with him tomorrow to go through the report and iv got some questions aswell to ask him.
Will keep you updated
I cant believe iv finally got a diagnosis and hopefully move forward Ill say it again thank you for all your support you’ve been given me and how how amazing this forum is
Youve been a god send 
Who did you have your appointment with? I feel like this so much, over Christmas I had a new set of symptoms which were awful. I’ve changed GP surgeries now and I’m hoping they take it more seriously.
I’m so pleased that you do have a diagnosis, & hope you can get further forward tomorrow!
That’s great news @Adele007! Please let us know what you learn from your phone appointment, too.
Thank you ill keep you updated 
I will do thank you
Hi skatkat i had my appointment with a mr Bidaye he works at the three shires in northampton. A really nice and understand specialist who is very knowledgeable and i think he believed me from the start he said hes seen people with it before but he also said we did his own research aswell. How long have you had your symptoms? Are you in the uk?
Skatkat are you on any medication? I’m on amitriptyline which has helped me its for the nerve pain if your experiencing that sort of pain. I had the same problem with all the GPS they just don’t take you seriously one pretty much laughed in my face whilst i was there in agony explaining all my symptoms but he still refered me as i was persistent and in so much pain crying my eyes out, then another gp had never heard of ES so had to explain to him what it was, it was like banging my head against a brick wall with them but What I’v learnt from all of this is that you have to be persistent, keep going back with all your symptoms and get them to listen and try to see the same doctor if you can especially if they are understanding so that there’s a pattern of what your experiencing and they can see your still suffering with the same symptoms all the time and so what your experiencing has to be what your saying it is. I saw 5 different GPs ( all with in the same surgery which doesn’t help because you have to start over explaining everything. I hope you find a GP who listens to you and get refered to a ENT to get a ct scan with contrast soon.
It will be interesting to see if he’s done surgery & is willing to help you, here’s a list of questions we suggest that members ask a doctor:
**Questions To Ask Your Doctor:
- How many ES surgeries have they done and what was the success rate?
- Whether they’re going to operate externally, or intraoral- through the mouth. Whilst some members have had successful surgeries with intraoral, external is better for seeing all the structures, to be able to remove more of the styloids, & also there’s less chance of infection.
- You need to ask how much of the styloid he’ll remove- as much as possible is best- & anything left needs to be smoothed off. The piece needs to be removed too- some doctors have snapped it off & left it in! If the styloid is only shortened a bit it can still cause symptoms.
- If your stylohyoid ligaments are calcified, then any calcified section needs to be removed too.
- There’s usually swelling after surgery; you could ask if a drain’s put in to reduce swelling, or if steroids are prescribed. It’s not essential, but can help with recovery a bit.
- Will it be a day case surgery or will you need to stay in?
- Obviously ask the risks- we know from experience on here that temporary damage to the facial nerve is quite common, and also the hypoglossal nerve and the accessory nerve. These usually recovery very quickly but in some cases members have needed physiotherapy. There is also the risk of catching a blood vessel or having a stroke, but these are very rare.
- Ask if the surgeon monitors the nerves- this should be done to see if there’s stress on the nerves to avoid damage as mentioned above.
- What painkillers will be prescribed afterwards.
- Ask about recovery- most doctors either down play it or are genuinely unaware of how long the recovery can take!
It would be good if we could add another doctor to our list!
Hi Jules
Iv just had the phone call from my specialist and hes going to refer me to mr hughes in london as you had recommended him so hopefully ill get the referral quick as im struggling quite badly my ENT said both styloilds are calcified and right side has gone down to my hyoid bone and its attached so everytime i swollow its pushing out thats why im hearing a big bang and click after everythime i swollow its so uncomfortable 
my left side is nearly joined up but has some compression on my jugular hence the falling feeling and the heart palpitations after a year of suffering iv finally got some answers and hopefully will get seen by mr hughes.
Thank you for all those questions ill be sure to ask mr hughes once again thank you for everything, I’ll keep you updated
Well, good that it’s been confirmed- your ENT doesn’t do surgery then? If the stylo-hyoid ligaments are calcified right down to the hyoid no wonder you’re having pain swallowing and hearing clicks etc! Poor you
Will you see Mr Hughes privately? Hope it’s not too long to wait!
I’m sorry you have so much extra calcification in your neck, @Adele007. We’ve only had a few members who have styloids that went all the way to the hyoid bone. I can only imagine how awful your symptoms are & I also hope Mr. Hughes can see you SOON!
Hi Isaiah
I can feel the pain getting worse everyday because the 20mg of amitriptyline just about take the edge off it now, and everyday im getting the calcified texture in my mouth, i just hope the left side doesn’t join up before i get surgery 
im holding off going any higher with the medication for now, hopefully things will start to move fast from here now as im spending most days resting in bed because curtain positions aggregate it, I’ll keep you updated
Hi Jules
My ENT does do the surgery but i thought as this is my first time having surgery I thought I’d go with one of the surgeons off the list.
Yes he said there both calcified and left side isnt that far away from the hyoid bone too. So would you class them as long compared to others on the forum? Yes hopefully i will see him privately if my health insurance allows me too🙏 and hopefully it won’t be to long before i get seen by him.
Can i ask you if mr hughes ordered another CT scan of your neck when you saw him? Also did he take the styloilds all out and not just break them off and leave them there( i didn’t know that surgeons did that?) And also how long did you have to wait for surgery from your first consultation? Many thanks