Dear Drea, I’m so sorry to hear your story. I’m in the Dallas area and was recently diagnosed with ES by Dr. Lee Pride at UT Southwestern. He was looking for things typically associated with pulsatile tinnitus (sinus stenosis, fistula, etc.) as I started experiencing that along with hyperacusis earlier this year. He had more MRA’s and CT’s done (I already had several others done) but he was the one that diagnosed me with ES and then referred me to Dr. Babu Welch at UTSW, who confirmed the diagnosis on 8/26 and then performed surgery on 9/5. I’m 5 days post surgery and I’m still suffering from PT and hyperacusis, but I’m hopeful that once the swelling subsides that I’ll get relief.
I understand how discouraging it can be, but keep looking for answers.