Oh, @Deanna , I’m so sorry that you’re not able to get treated in Canada, and that you’re feeling worse, it’s so much when you already have lots to deal with, and having waited so long to hear from Dr Periera too 
Was it in London Ontario you heard about a doctor, or London UK?
The doctors you mention are the best in the US for VES- Dr Hepworth in CO, Dr Nakaji in AZ, Dr Costantino in NY or Dr Cognetti in PA. Some members have told us that Dr Nakaji insists on having a CT venogram with pressure testing manometry before he agrees surgery, so not sure if you would want to have that done given your medical history, so he might not be the best one for you.
Otherwise Dr Aghayev in Turkey has done surgery for international patients, here’s a discussion by @Val7426 :
A Canadian’s Journey: VES Surgery in Türkiye Dec. 10 - General - Living with Eagle
And some videos by Dr C and Dr A about IJV compression, you might find it interesting to see their approaches:
New Video from Dr Costantino Regarding Jugular Vein Compression and Surgical Intervention - General - Living with Eagle
A Review Of IJV Compression by Dr Aghayev - General / Research Papers - Living with Eagle
I don’t know if any supplements are worth a try, we’ve had some discussions about that, there’s info here:
ES Information- Treatment: Pain Relief, Medications and Alternative Therapies - Welcome / Newbies Guide to Eagle Syndrome - Living with Eagle
I hope that you can get someone to treat you soon, hugs & thinking of you 
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