Thanks Isaiah for the warm welcome and the useful guidance on how to find doctors. I won’t give up or give in to this disease but mine is unique in that I have alot of symptoms that I can count. For example, my whole right side is weak and my muscle get tight. Not to mention the dementia like symptoms I get often.
For the folks wondering if IJVS can cause a whole lot of weird symptoms, you need to watch this youtube video (Venous Compression Syndromes: From Diagnosis to Treatment - YouTube). it is 16 min long and talks about Venous Compression Syndrome which IJVS is part of. At 13:30 minute mark, there is 17 year old lady who has suffered from quadriparesis (weakness of all four limbs) and could not walk as result of severe right jugular vein stenosis and when it was stented, she was walking within 24 hours and running on a treadmill within 48 hours. So this syndrome can cause all kinds of weird symptoms and I have tons of it. Probably because my right jugular vein is naturally diminutive and the left one is extremely compressed by the Styloid process and C1. Impaired or blocked venous outlet is linked to venous congestion and brain hypo-perfusion potentially contributing to cognitive issues such as memory lapses, brain fog, insomnia, vision and hearing impairment, muscle issues. etc.