Hi there! So glad that I have found this site. Super helpful, and much appreciated.
I was recently diagnosed with Eagle Syndrome by my dentist via xray. And I am so thankful I was! I have been dealing with multiple issues for at least 5-10 years. Some have been attempted to be treated by my doctor, diagnostics and ultrasounds done, but never truly helping. And many symptoms I never even mentioned because I always thought they would go away.
My most recent symptom is extreme radiating pain from my neck to my shoulder and arm. I had thought about going to the doctor for it, but kept thinking it would go away. Months later, I received the diagnosis from the dentist - bilateral Eagle syndrome, calcification of styloid ligament.
I was able to do a lot of research through scholarly articles and this site before I went to see my GP. She was very gracious, but admitted she didn’t know much about Eagle - that they mention it in medical school, but that it was so long ago and she had never encountered it. Thankfully she did some homework before my appointment to know what symptoms to check for. She was upfront about talking to a radiologist to confirm what type of CT exactly to ask for. I am scheduled for that on Tuesday.
And, because of everyone’s experiences on this site, and the list of doctors, I have been able to schedule two appointments (one for a second opinion) with Dr. Hinni at Mayo Clinic in Phoenix and Dr. Bove at Northwestern in Chicago (no specialists that I’d want to work with in the Detroit area). My Mayo appointment is pretty quick - in less than a month, and Northwestern is at the end of January. Hopeful that I will have two good options to choose from for potential surgery.
I’ve had neck bulging and pain on and off for many many years, the currently severe neck/shoulder/arm pain, tingling in my arms, pain near my tonsils, difficulty swallowing, pressure in my head and at the base of my neck, severe brain fog, ocular and regular migraines, thunderclap headache, constant regular headaches, pressure behind my eyes, blurred vision/trouble focusing, occasional jaw and ear pain, tinnitus, sensitive hearing, positional vertigo, regular vertigo, car sickness (now when I drive) - almost constant dizziness, occasional balance issues, trouble sleeping, flushing head when sleeping, hoarse voice… the list could probably go on.
I’ve also been diagnosed with fibromyalgia (sounds like it is related) and have hypothyroid. Some symptoms may be attributed to those. But if I can get relief from a few of those symptoms I will be happy.
Wish me luck on this journey!