@CTT - Though we have several doctors on our Doctors List in your state, none of them seem as experience with ES as others we have on our list - for example Dr. Osborne whom @Jules suggested you request a consult with.
Here’s a quote from @LisaMaria’s recent post regarding Dr. Osborne’s view of ES diagnosis which we completely agree with:
Another thing I learned from Dr. Osborne that I think is important…the idea of a certain length being regarded as a diagnoses criteria, he said that is totally antiquated and he wished it would be done away with. He said being able to see the styloids on ct now, and especially 3d images, makes it a total game changer because we can now see very well what is going on with the styloid and see what it’s messing with and its not about length but about what’s going on in that individual person. People that need help won’t necessarily get the help they need if they don’t meet this antiquated length criteria that’s still being implemented.
Here’s the link to her full post as well: