Since calcified stylohyoid ligaments may be a way for your body to stabilize your head/neck because of the CCI, maybe removing them will make the CCI worse?
I am in the exact same situation as you at the moment. I have calcified stylohyiod ligaments and I also think I have CCI because of a lot of dysautonomic symptoms. But sadly there is no good help for either Eagles or CCI in Sweden.
That’s a debate we see quite a bit on here @Erik.Swe , unfortunately not even doctors can agree!
Hi @Disabled_Inventor. Thank you for posting this information and your photos. I am now measuring things on my own imaging. I am a little confused about your third posted photo. You are calling it the McRae line. It is my understanding that the McRae line goes from the basion to the opisthion in order to diagnose basilar invagination and/or low lying cerebral tonsils (Chiari). Are you perhaps using the Basion-Axial interval as opposed to the McRae line?
I’m just wanting to know exactly which one it is for my own investigations. Thanks!
Hi @Ladymaestro1 I am not sure now that you ask. I think I have used the wrong term.
https://radiopaedia.org/articles/mcrae-line?lang=us
This is probably a good source of accurate information and yes, it appears that the line is not the McRaes line but the Basion-Axial interval, here is the link for that.
https://radiopaedia.org/articles/basion-axial-interval-1?lang=us
I am going to be doing a deep dive on my imaging soon and will share my links if you like so we can compare notes. You are correct, I was using the wrong term. Are you also potentially dealing with an instability issue along with Eagles as well?
I’d love to see your images or any websites you are getting information off of the help you in your quest. I cannot afford the https://mskneurology.com/booking/ fees yet, but am saving so that I can have a consult to have a dedicated specialist look over my films to help me make some clinical sense of them. Until then its me trying to apply this stuff to share with a doctor who hopefully will not even have to listen to me but will see these things for himself in the films when I finally get to his office appointment.
Hi @Disabled_Inventor ! I am so sorry for the long delay in responding. Life got away from me.
I am glad we worked out the proper identification of the line vs interval!
I have second side styloidectomy/IJV decompression surgery next week. It is possible that I might have CCI issues, but that is not confirmed at this moment. It is something that my surgeon (Dr. Hepworth) will explore later if this surgery does not resolve my issues.
I’m not going to post images at this moment as I am just too overwhelmed with head symptoms to go edit them for posting.
However, here is a link to one paper that you may find useful. I found it very helpful!
Prayers and blessings on your journey! 
Hello everyone! My name is Valery, I’m from Russia. I am 44 years old. I’ll tell you my story. At the age of about 18. I developed my first symptoms. These are attacks of acute malaise, gait, imbalance, Crisis, hand simulation, face, sometimes there were convulsive states. All symptoms cannot be described. I think there were factors that could have indirectly or directly affected my condition. It’s a blow to the head with a heavy club, and there was a whiplash injury to the neck in a traffic accident. The symptoms were seizure-like, and I mostly felt satisfied.5 years ago, I slipped and fell on my back, and my condition deteriorated very much, began to feel terrible on a constant basis. Disruption of coordination, prefainting state, blood vessels in the head are suffocating, lack of oxygen, spikes in crisis pressure, all the symptoms cannot be described, and the condition changes from the rotation of the head of the neck, when you press the skull, when you clear the neck muscles, the condition also changes. Angiography CT scans revealed several causes. This is Needle Syndrome. I have internal nerve veins wedged between the C-1 transverse process and the awl process on both sides. on the left completely, on the right today, the distance is 1.5mm. An anomaly of cimmerli with Vienna’s tuck with an artery is also diagnosed, pressing on each other. Also diagnosed with thoracic aperture exit syndrome, I have already had surgery on the upper thoracic aperture on the left, my anterior stair muscle removed. Rather, the condition worsened. Now there’s another doctor who can remove the awl-like processes. The transverse processes of S1 I have are also large, but I need to understand whether in my case I need to shave them or in my case it will be enough just to remove the songyl processes. You need the opinion of a competent doctor.
Hi Valeriy! So sorry that you have Thoracic Outlet Syndrome and that the surgery didn’t help at all, that’s so frustrating! Unfortunately we do see quite a few members with both syndromes, it does seem as if there could be links with different vascular compressions… Have you any symptoms of cranio cervical instability, or been assessed for that? Obviously we’re not doctors on here though…
Are you aware of any doctors with experience of this in Russia, other then the ones on our doctors list?
Looking at your images, it does seem as if the C1 process is causing a fair bit of compression as well as the styloid process. When you had the scans, did you have your head tiltled back quite a bit/ Normally we see images where the head is in a more neutral position; it looks as if your C1 process is tilted upwards quite a bit, which could just be from your head position, but it does look like that’s making the compression worse…
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Hello, Valery! I’m really sorry you have thoracic exit syndrome and that the surgery didn’t help at all. It’s so disappointing! Unfortunately, we see quite a few participants with both syndromes, and it seems that there may be a connection between them with various vascular compressions… Do you have symptoms of craniocervical instability or have you been examined for this account? Of course, we’re not doctors here…
Do you know of any doctors with similar experience in Russia, other than those on our list?
Looking at your images, it really seems that the C1 process causes a fair amount of compression, just like the awl process. When you were taken pictures, was your head slightly tilted back / We usually see images of your head in a more neutral position; it looks like your C1 appendage is tilted a little upward, which may just be because of the position of your head, but it seems to make the compression worse…
Valery
8 m
Craniocervical instability has not been diagnosed, and additional examinations will be needed. Instability of the cervical vertebrae and protrusion, as well as kyphosis and hyperlordosis, were noted. As for doctors in Moscow. Jaw-facial surgeon Nazarian David Nazaretovich works at the FMBA at 30 Volokolamsk Highway. He removes only awl-shaped processes and performs several operations a week. I’m looking for someone else who does these surgeries now. I might need to shave the C1 transverse process as well. I’ll give you information later on about the other doctors I find. Zaderenko sends me off in Blokhin, but he didn’t want to take me on. I was afraid that blood vessels were clamped and there were associated problems in the form of the Kimmerley anomaly.
@Valeriy - Because of how severely your internal jugular veins & how big the transverse processes of your C1 vertebra are, you will most likely need to have some shaved off. I agree w/ @Jules that it appears your head is tilted back in your images, but if you have hyperlordosis in your neck, that could explain why they look like that. Having kyphosis of your thoracic spine may be exaggerating the lordosis in your neck. I can see both problems in some of your images.
Are you able to travel outside your country for surgery? If so, you should consider seeing Dr. Kamran Aghayev in Turkey. He does styloidectomies & IJV decompression surgeries w/ C1 shaving if it’s needed. He also does TOS surgeries so you could get a second opinion from him about why you don’t feel better since you had your surgery. He does telehealth or video consults so you wouldn’t need to see him in person to get his opinion.
•Dr. Kamran Aghayev - https://kamranaghayev.com
We have had one or two members who also had the Kimmerle Anomaly, but I’m not sure if they ever had or needed to have surgery for it.
Hello. Thank you, I’ve already written to this doctor, I’m waiting for an answer. Thank you very much.
четверг, 07 августа 2025г., 08:41 +03:00 от Isaiah_40_31 via Living with Eagle notifications@ben-eagle.discoursemail.com:
