@KarenG - I’m so, so sorry for how difficult this journey is for you & Ben. I wish there was a way to make it easier. I’m guessing Dr. Fargen is the only doctor you’ve seen for a consult & would suggest since he’s willing to do Ben’s surgery, you get him scheduled w/ Dr. Fargen. I know traveling all over the country for additional opinions is out of the question so that would be the path of least resistance.
@TML looked at the imaging you sent previously & said he sees IJV compression between Ben’s styloid & C1 bilaterally in this discussion:
@KarenG you’ve found it! Definitely compression between styloids and C1. So definitely will want to pursue surgery with a surgeon who is experienced with cutting the styloids above the level of C1!
Compression appears more severe on his right side (left side of image where you circled)
Maybe the EEG isn’t necessary unless it’s critical to know whether Ben’s seizures are epileptic vs non-epileptic for anesthesia purposes.