My daughter had three abdominal compressions fixed by Professor Sandmann in Germany this year. she has much improved from the severe blood pooling she had in her feet and arms. Prior to surgery she had to wear travel socks when leaving the house to prevent nausea and leg swelling and cold sweats in her feet. Her feet could not hang down for more than a couple seconds and they would be reddish purple. She also had daily complaints of numb legs. Yes, both legs were affected but the left was more severe. Now since surgery she no longer needs those travel socks and wears mild compression socks daily to keep her feet warm. The illeac vein to her left leg was adhered to the bone from the major compression of the ligament pressing on the vein. A stent was wrapped around the vein to allow proper blood flow. No blood flow was getting thru that vein anymore and it was rerouted across her pelvis to the right leg. That vein was double in size from the massive blood volume and then the blood was rerouted up her spine to her head and heart since the renal vein was compressed also. Yes, the extra blood traveling up the spine can cause severe pressure headaches as the blood cannot get where it is to go. She still has severe headaches but we found out also while in Germany from the ultrasound Professor Scholbach did for diagnosing the vascular abdominal compressions that she also has jugular vein compression. She just had the CTV done of head and neck yesterday and now we are waiting to hear from Dr.Hepworth what the next step may be. Dr.Hepworth says when one has Nutcracker syndrome they most likely have IJV compression as well. He said what the reason is but we do not remember, do any of you know?
My daughter still has numb left leg at times even though it is 9 months post surgery. Does anyone have an idea what still could be the reason? Is it possible the body would take some time to readjust? Or did the body develop collateral veins around the massive compression?
Luckee7, If you have an ultrasound to rule out May-Thurner just be aware…. the tech will find no problem if you are lying down for just a few minutes before the procedure. Be sure to lie for at least 10 minutes and then see the difference. My daughter showed no problem with the illeac vein before the Germany diagnosis because the tech always checked immediately after lying down.