@Sara - all the symptoms you’ve mentioned have been noted with ES. Ear, jaw joint, teeth/gums & sinus pain are likely related to trigeminal/facial nerve irritation. Tonsils, roof of mouth & tongue can be from the glossopharyngeal & vagus nerves. Tongue can also be the hypoglossal nerve. Neck, shoulders & upper back pain are likely from spinal accessory nerve irritation. Fatigue is likely from your pain but can also be a result of the vagus nerve being upset. We believe there are 7 of our 12 cranial nerves that can be affected by elongated styloids &/or calcified stylohyoid ligaments.
@Jules has written a great post that goes over the affected cranial nerves:
I highly recommend you contact Dr. Cognetti’s ofc. He will do an initial virtual consult if he’s too far away for you to see him in person easily. He would be able to refer you for a CT scan. If you can’t make an appt. w/ him because you aren’t officially diagnosed w/ ES, ask his ofc if they can refer you to someone who will give you a referral for a CT scan which is diagnostic for ES.
•Dr Cognetti, Thomas Jefferson University Hospital, Philadelphia 215- 955- 6760 (Has done many successful surgeries on members). Only removes ligaments if calcified. https://hospitals.jefferson.edu/find-a-doctor/c/cognetti-david-m.html