I’ve made a note of the date… not great to go into surgery knowing it won’t fix everything, but at least you’re prepared! You’ve been a great source of info on here, so pleased to be able to pray for you 
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Thank you!!! Everyone on this site has been extremely helpful and kind. I treasure everyone!!!
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Off topic but I had a massage because my muscles were super tight around my neck, and causing me more migraines than normal. I’ve had a chiropractor in the past and everything has been fine when I got that done, but after this massage I felt dizzy and am feeling my pre-syncope feelings. I don’t understand why this is happening, I about fell when I got out of the bed and when I was redressing. The doctor said there was vascular eagles so idk why I would be feeling this way. My balance is back to mostly normal but I’m still feeling some pre-syncope. Thought you guys might know a little?
We’ve had other members who have vascular ES & had a similar response to massage & chiropractic care. It may have happened because massage stimulates circulation in the areas that are massaged, & since your massage focus was neck muscles, the increased blood flow trying to get through obstructed arteries/veins likely heightened your symptoms.
I see, thank you for letting me know. I was already nervous getting the massage, and my therapist was also a touch nervous to do it because of my ES, so I got really concerned when I was suddenly having those symptoms. She even said she read that we aren’t supposed to get massages (yes she read up on the condition because she’s very sweet 
)? I was mostly convinced my syncope was from blood volume, but now I’m more concerned. I would worry about pots but it doesn’t always flare up from getting up or moving around a lot (though if I’m moving for more than 5 minutes of extensive movement it’ll come up), and it’s normally when I’m sitting down.
I currently do not have access to my ct scan, but I’ve asked my mom to import some photos so I am able to show you guys. I definitely want a second opinion on it. I’ll make a post on it once I get the photos. I appreciate you guys so much! 
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I am so relieved, your are going to see someone. Big hug and good luck 
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Hopefully next wednesday I see someone who at least knows about ES, but how much I am uncertain. I am also scared of meeting an other ignorant, but thx to this forum,I hope I can assert for myself better now. 
THX 
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