Hi All,
As per my previous posts, I’ve recently had a right styloidectomy on 29th March 2016.
Follow up has been fine.
Just a quick question for those that have had similar surgery, do you feel a dryness in your mouth?
I’ve been having this dry type feeling for past few weeks now, not really sure what to make of it. It’s more on the side that was cut. Everything seems to be healed from the looks of it and I find it hard to believe that the internal wound would be the culprit.
Anyone?
Thank you for all the information. I’m having a really difficult time with the doctors in the Kaiser Network in San Diego. The only doctor who has any experience with ES is an oncologist. Who is the doctor who you know of at UCSD? I’d been willing to pay cash for an experienced opinion.
Thank you
Now the taste in my mouth changes on a daily basis and it feels as though my neck is imflammed and there is something stuck in my throat…
Sorry that you’re still having problems- the dryness and altered taste could be perhaps that a nerve has been slightly damaged/ irritated by the operation. If it is that then nerves can settle with time, but other members have found it can take 6-12 months. Have you mentioned any of these problems to your doctor?
Hi Jules thanks for getting back to me.
I’ve booked a secondary follow up with the Dr that carried out the procedure this coming Wednesday. I will explain to him what I’m feeling and hopefully he can shed some light on this.
It’s quite frustrating as post op - about two/two half weeks later I think I may have contracted a Viral which has forced me to cough a lot perhaps distrupting the healing process. Also chronic asthma has kicked in as we are now approaching that summer time and allergies are rife. Was prescribed Clarithromycin for 7 days and still feeling strange in the throat with a major chronic cough.
I’m wondering if this could be the reason for the feeling of the entire neck / throat beimg swollen? Definitely not feeling right at this moment.
I’m just worried it could be thyroid cancer or throat cancer 
Hi Michelle, Sorry you are having troubles. An oncologist can be a great surgeon. Dr. Samji in San Jose is an Oncologist. I flew down from the Seattle area to see him. There is a spread sheet that’s been filled with members experience of who they used etc. I was thrilled to find someone with success on the West Coast.
Hi amzi1645, please don’t worry about cancer. You have had many test before your surgery. Please don’t worry. I’m still waiting for my surgeries, but when I researched my medical files I found my symptoms were much worse from crying or choking back tears. For me clenching in that back throat area exasperated the pain. Hang in there, I’ll be praying for you.
Hi amzi160586. Two month post-op is still very early. Nerves can take many months to heal, and when they do heal, they often go up and down. It can be very hard to tell what’s going on for sure until about 6 months after surgery. And I agree with MusicGeek, you’ve been tested and have had doctors looking in your throat, so I don’t think you have to worry about cancer. It’s most likely nerves that are acting up. Good luck and keep us posted on how it’s going.
Thank you for your response.
I found a very hard substance that’s about to surface and puncture through the tissue in my throat, right below the tonsil. The doctor completely missed it. I found it by sticking my finger in my mouth. Doctor states that my symptoms will not improve with surgery but that we will do it anyways cuz i just can’t keep going back. Very assuring. Any others told surgery won’t relieve symptoms but surgery was a success.
Hi Michelle,
I haven’t had surgery yet. I have the same sort of thing sure my left tonsil used to be. The doctor pushed on it and found where the right side was much lower. About an hour after he pushed on the bones I became very ill. Please be careful about pushing on them. My doctor told me there rent any promises the surgery would relieve my symptoms. He then listed off symptoms I had that I never knew could be associated with ES. Lol he thought he was telling me to not get my hopes up and he did the opposite since my hopes weren’t up other than relieving the pain and ear pain. It is bizarre that we seek help out of desperation and are treated like tire kickers. Hang in there. My surgery is the end of August.
Who is the encologist in San Diego you are referring to? I’m going to UCSD but can’t find anyone with Eagles experience.
So sorry I didn’t know about these questions. I saw Dr. Samji in San Diego. I had two successful surgeries, but it was found that there was much damage from a fractured ES bone. I’m still healing, but Sooo much better. It also appears I type better now LOL.
Correction - Dr. Samji is in San Jose, CA.