November 8th. This has been happening over 10 years, but blamed on thyroid, parathyroid, statins, migraines, depression, concussion, and a host of other things I now don’t have. Less than a month and we can start getting to the bottom of otherwise very good health. Luckily I found extreme cool and meds and low music help unless I get physically ill first.
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Is everyone doing okay? Haven’t posted much because no new ES news for this update. Granddolls are wonderful. Oldest gave me slight congestion so I isolated myself from youngest so she won’t be sick. Youngest is struggling to gain weight, please keep her in your good thoughts, weigh in early AM. Don’t want her to need to go back to hospital. Hopefully, I can be near her later today, but will love from next room rest of week if needed.
Isaiah 40_31, you’re so right! There is no lack of energy, attentiveness or love for these sweethearts…
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Hi DeeG
I just did a triple half marathon challenge around Lake Tahoe last weekend. Legs are sore but otherwise all is well!!
So glad you have your sweet grandbabies (I love your term “granddolls” 
!) to help distract you as you await a diagnosis. I will pray for the newest addition to your family. 
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What? Is that 39.6 miles? That is WONDERFUL! I did that, but it took me a month 
Someone on this site said granddolls and I thought is described them perfectly. Baby gained 8oz this weekend so I’m very happy today!
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I’d say your legs would be sore!! Three marathons in three days (I had to look it up) Thanks fantastic.
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I’d like to brag that I did 3 marathons in 3 days, but it was only half marathons - a total of 39.3 miles. I am signed up for an ultra marathon next spring. It’s a 55k - 34.2 miles which will be very technical (boulder climbing & hiking through caves, etc). I have 12 hours to cover the distance (but I’ve heard that’s a bit flexible). It’s in the Antelope Canyon section of the Grand Canyon. It will be my “last hurrah” before I “throw in the towel” & stop doing this craziness. My brain loves the challenge but my body not so much!
This ability to do difficult physical challenges is a testimony to the effectiveness of my ES surgery. I’m so grateful! I wish this was the end result for everyone w/ ES!!
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I am so happy for you and not one bit sad I cannot do those things right now. I know I will be able to do so much again and am satisfied I’ve been able to keep up with most things at a lower “enthusiasm” level, shall we say. It thrills me to hear you speak of your adventures. So happy you get to call it quits when you want rather than just not being able. You should go hard and when you get that course done wave to all of your fans! I’m a fan, woo hoo!
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Totally agree with that! Well done you Isaiah! 
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Thank you, DeeG! Once you get a proper diagnosis & are able to get treatment, your life will return to more normalcy. You’ll be crawling around w/ those cute grandbabies & enjoying every second of it. It’s so great to have things to look forward to. That’s part of what gives us hope & keeps us looking for the right answers when we have a mysterious health situation.
17 days out from what could be diagnosis day and someone at work asked am I anxious. Well sort of, but I live with what’s normal now and cannot think about what might be a wonderful new normal or I will feel less than normal now. I am so blessed to work and enjoy some activities fully as I did before. It is so wonderful to have Friends-in-ES I’ve never seen with my eyes, but felt the compassion down to my soul.
Right now is not the time for me to get anxious… I am ready for a diagnosis and plan, but my anxiety remains in its moderately managed state.
How is everyone doing today? I hope feeling well or at least improving…
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Great attitude, DeeG! I’m happy that you have a good strategy for managing what could be awful anxiety! Your perspective on your situation is very realistic & that is huge.
I love what you said about having “Friends-in-ES”. With modern communication abilities, it is amazing that we can have friends we will never meet. The world is getting smaller by the day, isn’t it!?
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Good that you’re keeping calm- you’re doing better than I did! And getting stressed will likely make things worse so very pleased for you!
Oops, thought I replied yesterday…Yes indeed is smaller with each innovation!
Thanks Jules! I have to work on it every night or the stress builds up, but each kind word or answer I read helps me get through another day of this. I try to log on everyday to keep up with all the conversations. Thanks everyone!
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15 days out and I am just so tired today. Made it through work day though and only one more to go this week. Looking forward to the weekend!
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Good job, DeeG! One day at a time. Sometimes it’s one hour at a time, but the clock keeps ticking & days pass. I’m so sorry your wait for this appointment has been long.
Each passing day brings it a day closer!!
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Thanks! I’m feeling better today and my boss let me work from home so that helped… Another early day tomorrow for the Komen Walk then I can come home and go to bed. Yippee!
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AWESOME that you’re doing the Komen walk! I did the Avon Breast Cancer Walk for 5 years. Komen had left our area, but maybe someday I’ll target all 3 days of that one! I did the breast cancer journey w/ a friend for 5 years before it took her from us, thus my 5 years of dedication to fundraising & walking w/ Avon. Now I’m on to Alzheimer’s as we lost my father-in-law to that a couple of years ago. Sigh…life marches on…
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Yes I have done Komen, for most of my 11 years in LR. Had pretty much no experience with breast cancer deaths until I moved here and there are a couple of families I know in Jacksonville, AR that are hit so hard I try to do what I can. My favorite survivor lost two of her daughters to breast cancer within two years so I add my support where I can.
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