Hi, & welcome to the forum!
There’s lots of info in the Newbies Guide Section, here’s a link:
Latest Welcome/Newbies Guide to Eagle Syndrome topics - Living with Eagle
It covers subjects like common symptoms & possible explanations, treatment, surgery etc.
The past discussions can be useful too- they’re searchable by topic; we’ve got lots of members who have also got a TMJ diagnosis, and the symptoms do cross over, so you might find having a look at some discussions helpful.
You don’t need an MRI- it shows soft tissues better, so not useful for elongated styloids, or calcified ligaments. How were you diagnosed? A CT is the best diagnostic tool for ES, & if you have vascular symptoms (dizziness, eye pain, fainting, head/ ear pressure etc) a CT with contrast would show if there’s any compression of blood vessels. If you get any symptoms with your head in a certain position it can be useful to get the CT with contrast done like that, e.g. turning your head could push the styloids onto a blood vessel. The feeling of your head pulsating could maybe be a vascular symptom.
The pain and tingling in your arms could be due to pressure on the accessory nerve; ES is unlikely to cause tingling in your feet, as the nerves affecting legs exit the spine much lower down. However, some members have mentioned this, there can be weird or wacky symptoms sometimes! Raynaud’s can be an autoimmune condition, & some members have developed AI conditions as well, maybe the inflammation caused by the styloid processes triggers it?
Surgery is the only ‘cure’ for ES; there can be some medications to help, there’s info about that in the Newbies Guide too. There are medications to help with nerve pain, & muscle relaxants like Baclofen can sometimes help. And some members have had help with steroid/ lidocaine injections into the area, although these don’t last long, & can’t be done very often. Surgery does have risks though, so shouldn’t be undertaken lightly. The risks are lessened if you see a surgeon with experience. It’s a personal decision, depending on how much the pain & symptoms are affecting your quality of life. If you are considering surgery, we have a list of doctors familiar with ES in the Doctors Info Section, here’s a link:
US Doctors Familiar With ES, Current List - Symptoms and Treatments / Doctor Information - Living with Eagle
If there’s no-one in your area, then it’s worth travelling, & some doctors do phone consults too.
I hope this helps!