Hi kforssen & Snapple2020,
I am new to ES and also from the Seattle area. I am having similar issues with doctors/specialists in the area who have even heard of ES. I had an appointment yesterday with a pain management doc (probably the same one you saw for PRP/prolotherapy) who I have been seeing for a while. I brought up ES with him because he has it listed as a condition that he treats on his website. He completely disregarded it as a possibility and wants to look at other issues. Finding someone who can even refer me for a CT has proven difficult. Any recommendations you have for docs in the area that might refer for a CT would be greatly appreciated. I have only been following this community for a couple of days, but it is amazing how many people are following similar paths because of this crazy condition. Hang in there!