Surgery date set, advice?

Hey there everyone, just coming in to update everyone that I have a surgery date of October 8th with Dr. Osborne in LA. I have unilateral eagle syndrome, on the left side. Did. Osborne estimated about 4.5 cm.
I’m SO excited to get some relief from these hellish symptoms. When I first had debilitating symptoms, I was so terrified not knowing what was going on and contemplated ending my life more than once. Now it’s just a waiting game at this point and what relief it is.
Can I get some good vibes, prayers and maybe some advice about how to handle surgery, recovery, etc what to expect? Wish me luck!
My biggest fear is being put under. I hate not being in control of my body but I’m sure they’ll have me so doped up that I won’t care when it comes time.

Here are my current (and past) symptoms for anyone wondering:

Ear pressure
Head pressure
Sinus pressure
Eye pressure
Teeth pressure
Neck pressure
Roof of mouth pressure (past)
Constant dizziness (past)
Brain fog (past)
Night sweats and constant panic attacks (past) still have anxiety bad though
Gagging and tight/full throat sensation
Trouble swallowing
Arm weakness and cold
Feeling like I’m gonna pass out or can’t catch my breath
Face tingling (past)
Blurry vision (past)
Neck muscle pain
Dystonia (past)
Not being able to hold head up (past)
Gravitational pulls where it feels like I’m being pulled by the world violently to one side (past) - SUCH a hellish symptom
Feeling like I’m on a boat - used to be all the time, now it just happens when I’m laying down

Thanks again! :slight_smile:

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@Monica - I’ve put your surgery date on my calendar so I can pray for you especially that day. I’m so glad you have a date that isn’t too far away! You’re fortunate to have unilateral ES vs bilateral, but from your symptoms list, I can see the one elongated styloid has certainly caused you a lot of grief! I’m glad you received a diagnosis in time to save your life. I know of other members on our forum who also felt suicidal from their symptoms prior to diagnosis, too. What a relief to finally know there’s a specific cause for all the pain, misery & anxiety!

Having had several surgeries, I can tell you that being put under happens so fast, you aren’t aware of it happening until you’re waking up. When you’re in pre-op there will be one or more nurses who attend to you. You’ll be given a bag in which to put the clothes you’re wearing, & you’ll change into a lovely :joy: surgical “gown” w/ poorly matching socks to help keep your feet warm. You’ll be covered w/ a warm blanket (unless you don’t want/need it), and your IV will be started w/ a saline drip initially. You’ll be plied with the same questions repetitively by several different pre-op nurses & will have to sign a few more documents. You may have a bit of quiet time for a snooze or to just be still, but in general, the nurses will keep you occupied nearly until the time the anesthesiologist comes by to introduce him/herself to you. After that, Dr. Osborne will likely stop by for a short chat then you’ll get wheeled into the OR, & the next thing you know, you’ll be waking up.

In post-op, you’ll be monitored for nausea & pain & will be given IV meds according to your needs & ice for your neck (if they don’t give you an ice pack automatically, ask for it because it really helps right away). Depending on the length of your surgery, pre-op, surgery, & post op take from 4-6 hrs. or more if the post op staff feels you need a bit more recovery time before being discharged.

You’ll be drowsy & sore after surgery so when you get back to the place you’re staying start icing immediately - 15 min on & 45 min off. Put a thin towel or cloth between your skin & the ice pack even if the ice pack has a cover. We recommend gel ice packs because the conform well to the shape of the neck & aren’t too heavy. If you choose to lie down, do so w/ your head very elevated (30º or more is the most helpful). I came home & sat in our recliner for the rest of the day w/ it slightly reclined after each of my surgeries. You may be starving & feel like eating. It’s a good idea to start w/ soft foods because having a sore jaw/throat post op is common & chewing doesn’t feel great for a few days to a few weeks. That said, some people are fine immediately post op & go out for a burger :laughing:. You’ll know what’s right for you.

For the first week (at least) post op sleeping w/ your head elevated will help reduce swelling in your throat & neck. Icing on & off all day will also help w/ that. Getting up to take 2-3 short walks (10-15 min)/day is helpful to keep your blood circulating which also helps w/ recovery. I advise against walking alone initially as the pain meds may make you feel a bit loopy. If you take Rx pain meds, you’ll need to start on a stool softener & laxative ASAP after surgery & daily until you stop the Rx pain meds, as opioid pain meds are VERY constipating, & you don’t need to add that to the post op discomfort.

The anesthesia & other meds you get during surgery can hang around in your body for a couple of days after surgery giving the illusion that the pain isn’t as bad as you thought so you have the temptation to reduce the frequency at which you take your pain meds. However, days 3-5 post op are when the swelling peaks so that time frame is not good for deciding to cut back your pain meds or reduce how often you ice. Healing going forward is up & down w/ good days followed by less good days but over the course of a month or two, the good days will be more numerous & the less good will gradually disappear. It can take 4-12 months to really notice symptoms are gone. It just depends on how slowly or quickly your nerves heal. Also, when you do have good days initially, enter them w/ baby steps not head long as taking things slowly will help prevent you from feeling more sore & tired the next day. Rest when your body asks as that is also helpful.

Advice has been given to start doing gentle finger tip massage on your incision site once the wound is healed (3-4 weeks post op, I think). Use a lubricant (vitamin E oil, coconut oil, Bio Oil or lotion) so your fingers don’t drag on your new skin. The massaging helps to keep scar tissue from becoming too dense & also stimulates circulation which will help wake the local nerves up.

I think I’ve covered most everything, but I hope others will add their experiences & comments, too.

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I’m so pleased that you have a date for surgery, good you’ll only have to go through it once! You’ve had some nasty symptoms; hopefully they’ll be gone once you’ve recovered :pray:
I wasn’t so worried about being out under- it’s just like falling asleep from my experience, you’re not aware of anything- my worry was what I would feel like when I woke up, but that was fine & I needn’t have been stressed about it!
There’s lots of info about surgery in the Newbies Guide & in the discussions, as many members have posted about their recoveries- if you search for ‘what to expect after surgery’ for example it should come up quite a few links…one of our members also did a surgery shopping list, I’ll give you the link for that:
Surgery shopping list - General - Living with Eagle
ES Information- Treatment: Surgery - Welcome / Newbies Guide to Eagle Syndrome - Living with Eagle
I think that @Isaiah_40_31 has covered everything! Will pray for good results for you :hugs: :pray:

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@Monica Let the doctor and/or anesthesiologist know about your concerns over anesthesia in advance and they may be able to give you something to help calm anxiety while you wait in pre-op. Once all the forms are signed, they should be able to give you something to relax a bit through IV or with a small pill. Deep breathing and calming music (bring ear buds if you can) in pre-op can help. The doctors who do this type of surgery are the absolute best in the business, and their support teams are also the best, so they will take very good care of you while sedated. You’ll get a great nap and it will be all over when you wake up. Have happy thoughts that a solution to past pain is on the way!

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Hi there, I just joined and am so happy to have come across your post. Congratulations on securing your surgery date! I just had my first zoom meeting with Dr. Osborne yesterday. He seems very Knowledgeable and I’m confident in his ability to do the surgery I desperately need. He told me he does a porotid approach, is this the same way he is performing your surgery? also I am from Canada and hoping to get to LA to have the surgery and am trying to find out what others are being quoted by him. I feel really strange asking that, and I do understand if you would rather not say… I’ve read other post of people discussing cost and that there is room for Negotiation there sometimes. I am so desperate for help and there are not really any Drs here especially in BC that have heard of Eagles let alone done the surgery for it. My list of symptoms are as follows! abrupt onset of feeling like there’s a lump in the right side of my throat with pain upon swallowing, Pain when I yawn in the back of throat, roof of mouth and under right side of tongue. shooting pains in side of neck when I move my head certain ways, also only right sided. feeling of pressure as though someone has their hand around my throat… feels gaggy or like I’m choking slightly. Base of skull neck pain, headache, ear ache and sometimes ringing, dizziness, brain fog, breathing difficulties especially when I first get out of bed in the morning, GI issues that have gone on for years with no real explanation. I’m sure I’m leaving things out as it has been one thing after another. I Paid for a CBCT that shows my right stylohyoid is just over 4 cm. the left side is also elongated but so far no one is doing any proper measuring of length or angle. I recently had a CT Angiogram, that the radiologist is saying is normal. However He also doesn’t think my elongated Stylohyoids are of any concern or cause of the symptoms I’ve been suffering with for 6 months! anyways, any and all info is greatly appreciated and I would love to keep in touch about how thing go once you have your surgery.

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Hi! I had an ER doctor tell me the same thing about my angiogram. They even told me my styloid ligament wasn’t elongated when it was. My advice? Just don’t listen to them. When you start to bring up topics and conditions they aren’t familiar with, their ego is bruised and they act like it.

As for your symptoms, they sound a lot like mine and I hope you get some relief soon!

I’m happy to talk about the cost. It’s upfront and you have to submit to insurance afterward, which is the sucky part.
The surgery for me is about $33k American, Canadian might be different. Happy to talk to you about anything regarding Dr. Osborne. I know he’s the perfect fit for me and I hope he is with you too!

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Hello!
yes the lack of interest is also what gets me! if its this rare thing, than wouldn’t Dr’s be more interested in it… the Canadian system is sooo broken right now!
well the thing is, with me coming into the states I will be paying out of pocket, no coverage at all… I figured it would be costly… I am waiting on a quote from them so I will just have to try and be patient. I have a hard time with that these days! It’s just so hard because the Dr here that wants to do the intraoral approach, has only done it a couple times and is kind of be quite non cholent about it, which doesnt sit very well. So now we are in the position of looking elsewhere for Dr’s with more experience at a hefty cost or taking a leap of faith at home, in a surgical area of many main arteries and nerves with a Dr who is like “yeah I can do that!”
Did you have to wait long for a date for yours? I’ve never come across the “pick a date, and we will try to make it happen” situation before!
I’m so thrilled for you, it takes so much weight off when you find someone that “fits”

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I’m so sorry you’re dealing with that in Canada. It’s no better here in the states really, everything sucks lol.

Thankfully Dr. Osborne is awesome. He is usually booked around 2 months out, when I called the surgery coordinator, she emailed me a list of dates and I could pick one, so that’s what I did. Very simple!

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@Katrink7 - Welcome to our forum! You have options if you’re planning to come to the US for ES surgery. Dr. Cognetti in Philadelphia, Pennsylvania, is a bit further from you but only charges our CA members $8500 for ES surgery (unilateral). That includes a free initial consult & follow-up via telehealth if desired. Dr. Cognetti’s charge for US patients, most of whom have medical insurance, is close to what Dr. Osborne charges.

Dr. C has been doing the transcervical approach for ES surgery for at least 10 yrs & possibly more so is VERY experienced. Dr. Osborne has a good reputation, too, but doesn’t provide a financial discount for out of country patients.

You would be in good hands with either doctor, but if money is tight, you might want to consider Dr. Cognetti. He has helped many of our members over the years.
•Dr David Cognetti, Thomas Jefferson University Hospital, Philadelphia 215- 955- 6760 (Has done many successful surgeries on members). Only removes ligaments if calcified. https://hospitals.jefferson.edu/find-a-doctor/c/cognetti-david-m.html

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Thank you so much for that info. I will definitely give him consideration also. I am loving this forum already. ask and you shall receive!!

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