Hi @Isaiah_40_31,
Oh thank you for following along with my struggles. It’s been very educational and honestly I have learnt the most on this forum. Largely in part to yourself and @Jules, but also the unfortunate struggles and discoveries of everyone on here. x
It’s a really incredible technology. I wish I could take credit for finding it but it was actually a physio I saw in Sydney who was stumped with my history and thought I could do with a vagus nerve reset on the Neubie as a starting point to calm the body. I was too apprehensive to start there (my nervous system was out of control) so he agreed that we would start with my most painful area which was the left Scm. After the first two sessions I got so much relief, and I lost the pressure headache I was getting in my head and back of skull. Compared to when I started it, I was hardly feeling the symptoms…however I began getting pain in my right hip, groin, buttock…where I’ve recently discovered have a very large anterior labral tear on my right hip and I think muscle strain in my LRQ. Until I can fix all of this, the upper neck pain is slowly returning but since I now know that my hip is more than likely the catalyst, I’m trying to be more conscious and start applying heat and releasing muscles as soon as I feel pain in my neck. I’ve also started to get more cervical instability type symptoms and found releasing the upper trap also alleviates this…
It’s going to be a slow recovery I think just because I have had this injury for 16 years undiagnosed and my body has heavily compensated during this time, changing the shape of muscles and likely weakening important stabilisers in the body.
Thank you @TML for the SCM article. I wish my case was a simple as this. I imagine I might have been back to myself years ago if my neck issues were the primary cause and not a secondary cause. I feel like a lot of our community would largely benefit from Neubie treatment as so many I believe have more complex situations like my own. Injury guarding, and compensating muscles, unsymmetrical weight bearing through the body, anterior hip positioning, gait, I feel like all of these could over time have a huge impact on the neck muscles and in turn force ligaments like the stylohyoid to have to stabilise. For me, it’s been so long, I may still need to address the continued IJV compression I have post op - I recently saw a specialist in Sydney who said it was a grade 3, but because I actually feel a lot of relief from my symptoms when I lie down completely flat, I’m going to start by working on the imbalances in the body first
Oh interestingly, the best outcome from the Neubie treatment for me was discovering that the pain I have had post surgery in the front of my neck near the carotid/vagus path on the left was in fact also caused by the compression of the Scm on those structures. It went away with the treatment…and now when I feel it coming I assess how Im standing or where my head is pointing and try to change things before it locks in. I was convinced it was my hyoid bone before that!
You’ve learned so much about your body & how human bodies, in general, work, @BraveKat! Maybe you should consider becoming a consultant for others w/ ES in your area of influence. 
Our member @vcp02 - is spreading the word throughout the medical community she’s associated with via her Optometric practice & is now working together w/ another medical professional to begin following up on patients who have had symptoms that could point to ES. It takes a village 
It’s really interesting how the SCM was causing so much of an issue, good job you didn’t pursue hyoid bone surgery! It is amazing how it all flows & affects different muscles etc, like you’re noticing with your hip…I’ve had more neck & shoulder pain recently which has flared some nerve pain on my left side (which seems to get everything worse!), had a myofascial release massage done & she noticed my right side was actually much tighter & thought that it was referred/ cross over pain, she’s noticed it with other clients…
@Jules - I’m sorry you’re having more pain recently. I hope the myofascial massage really helps!
I’m sorry to hear you’ve been in more pain recently. The body is amazing at compensating but it catches up on us eventually and something I read about pain recently, suggests that the body creates pain in the places most vulnerabe/that it needs to protect the most. So while it might not be the area that the original issue/injury occurred, it’s the one that is at most risk of causing severe issues for the body. So you might be compensating with many other muscles too, but the neck area is the most important area to protect and so the pain is the loudest.
I hope you can find what is causing the issue for you. Have you looked into whether a Neubie machine is available in the uk? It might be able to quieten the loud pain and point you toward the underlying issue.
I can’t see many places in the UK offering it, none local anyway, a shame!
I’m sure the myofascial release will help , the first one has made a difference…
Bummer about the Neubie but great that you have seen improvement with the myofascial release.