Hi Kurt & welcome!
I’m so pleased for you that you’ve seen some improvements since your surgery! Hopefully you’ll see more if you need the second side doing as well, we’ve seen that quite often here as there can sometimes be a cross over for pain & nerve symptoms. And nerves can take up to a year to heal so patience is needed with some symptoms. It sounds like your vagus nerve has been irritated, you might find this discussion interesting about symptoms that resolved:
Successful Surgery for severe Vagus Nerve Compression - General / Eagle Syndrome Stories - Living with Eagle
You’re right that there wasn’t much awareness years ago about vascular ES, certainly the C1 shaves are pretty new. I had my surgery nearly 10 years ago, the doctor I saw in the UK was aware that the styloids can compress the IJVs & had researched pulsatile tinnitus, he has written a paper a while back…unfortunately many doctors are still ignorant about the varying symptoms ES can cause & only recognise one or two, so if you can educate some of your doctors that’s great!
We have quite a few members waiting for surgery with Dr Nakai, so I’m sure your post will be encouraging for them, so thank you for sharing your story.
I’ve done an admin fiddle, you weren’t able to post the images as you’re a new member, but you should be able to now, just make sure you delete any personal info to protect your privacy.
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