Does someone with eagles syndrome experience the same strange symptoms as I do?
I noticed that on days when I am not in flairs I get this strange symptom - out of balance, especially when doing something with my hands. Like washing dishes, peeling potatoes, mixing something in pan, lifting my hands especially left hand, when bending over to brush my teeth.
If I force myself (women knows what I’m talking about) to keep doing housework like cooking, cleaning - symptoms will get much worse and I will develop pain in my jaw and neck. Pain is very uncomfortable, sharp. It goes even to my teeth.
The spinal accessory nerve can be affected by ES which can cause weakness in the shoulder & arms, but if it’s more of a balance issue then it’s not that…the vestibulocochlear nerve can be affected by ES & is involved in balance, so maybe when you lift your hands & do certain tasks it’s being irritated? Just a guess…I didn’t have this myself, I felt almost constantly off-balance!
Sometimes it really feels like that. Sometimes I feel like I sway to the left. Sometimes it’s feels like if I get this feeling too long I may pass out.
I found one mention of this nerve in a research paper:
‘The first group of symptoms, [concerning classic symptoms as compared to vascular symptoms] are characterized by pain located in the areas where the fifth, seventh, eighth, ninth and tenth cranial nerves are distributed and occurs in most of the cases after tonsillectomy which may have been performed many years earlier’. (Source Dolan EA, Mullen JB, Papayoanou J. Styloid-Stylohyoid Syndrome in the Differential Diagnosis of Atypical Facial Pain. Surg Neurol 1984, in the paper: Eagle’s syndrome: a case of symptomatic calcification of the stylohyoid ligaments, by Victor B Feldman).
