I am very happy that after 5 years I finally got a 3D CT scan and an ultrasound last night. I think I’ve had every other test in the world and no one ever recommended these. It’s sad when I have to start asking for certain tests because the doctors don’t do it. Or they don’t know about them. But anyway I’m glad it’s over with and now I wait. The lady was pushing very hard on my neck with the ultrasound wand and now my neck is really sore today and I feel very out of sorts but maybe that’s because I’m stressed. It’s neck pain, neck tenderness, heaviness in my eyes, numbness in my face, and of course the best part is the head pressure. Not really. Anyway I’m trying to keep a good attitude but then my other problem is once I get the results I don’t even know what to do. My general doctor ordered these tests for me because he felt so bad for me that nobody is seeming to take the time that they need to to figure out what I need done. I’ve had multiple brain scans. But I think this is what’s going to tell me exactly what’s going on. And now I need to take the results to a DR that can help. And they are usually very booked up. Did anybody feel weird after an ultrasound because they had to push hard? I try not to push on my neck now that I know I shouldn’t. I used to get massages and I would get very dizzy after. I don’t do that anymore. I make them massage my shoulders and everything around my neck. Anyway I’m just looking for some support because it’s hard and I feel alone and I feel bad because my poor husband has to listen to me cry everyday. He’s very very sweet. But I feel bad and don’t want to be such a downer.
We’ve had other members note that they were sore after an ultrasound due to the tech pushing hard on the utlrasound wand during the US procedure. I’m sorry that left you in pain.
If you’re willing to post your CT results here (please cover your name, etc), we can help decipher them for you. Also, you’re welcome to post some of your 3D images & we can give non-medical opinions about what we see as we have a lot of experience from years of looking at images that doctors said were normal but were NOT! We prefer pictures from the front/back & left/right sides. If you could include from skull base to hyoid bone in the front & side pictures that’s also helpful. Please make sure any personal information is covered on your imaging as well.
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I’m really glad you’re on your way to a diagnosis now & I hope we can help you find the right doctor to help you.
Thank you so much. I thought I was imagining it. Today was better than yesterday thankfully. When I get my results I’ll definitely share them. The waiting is hard but I’ve come this far!
In the meantime, I’m just driving myself crazy with the what ifs 
I hope the imaging is read soon so you can at least see what the report says. DO NOT be discouraged if the report says everything looks normal. We have had many members with severe symptoms who have gotten a CT report saying that. We’ve learned it’s because radiologists either don’t know what to look for or dismiss things we know is “bad” as being inconsequential. That’s why we encourage you to post imaging here so we can help set the record straight.
Thank you so much. My anxiety is suddenly going crazy. I think it’s the fact that I may be coming close to an answer after so long and what that might entail. Appreciate your message to me!
@cbu Sorry to hear that you are feeling so poorly. The anxiety make a lot of sense since your nervous system has been on high alert for a while and, for lack of a better word, gets a little cranky when it is asked to take on even more. The thing about anxiety is that it ends up amplifying the pain and other symptoms. It’s like it’s telling your brain, “there must be something really dangerous happening for me to feel this way so you better pay really close attention to what’s going on inside me”. So anything you can do to help yourself lower the fear will help everything. Engaging your mind in something, finding something you enjoy doing and really enjoy it, being around people who love you, using your breath to calm yourself, meditation, prayer…whatever works for you. Wishing you some peace.
I hope you get the results back soon, and they do show what’s going on… It sounds as if you could have vascular ES so Dr Damrose in CA or Dr Nakaji in AZ would be the nearest VES doctors to you.
I hope that your neck settles down soon, & the head pressure, and that you can find something to help calm the anxiety as @Chrickychricky has suggested 
Thank you so much. I see there is Dr Guo in San Diego who was listed here and also recommended by a person I met online but she’s listed as an oncology head and neck surgeon.
Fingers and toes crossed
Thank you. That was really sweet. And I know you’re right. I just need to keep calm. It’s just been so long and I’m feeling like I’m at the end of my rope. Deep breaths 
If you do have vascular ES, then sometimes it’s best to see a doctor experienced with that as they can make sure the blood vessels are fully decompressed (sometimes the C1 vertebra processes can be involved with the compression, or other soft tissues like muscles, blood vessels or nerves). So we do suggest that members try to get a couple of opinions if you can… Oncology head & neck surgeons are great for ‘classic’ ES as they often have to remove styloid processes to get to cancers during that surgery, but might not be so knowledgeable about blood vessel compression. There’s info in the section about surgery, questions to ask doctors etc:
ES Information- Treatment: Surgery - Welcome / Newbies Guide to Eagle Syndrome - Living with Eagle
Thanks that’s definitely good to know!
@cbu I agree with @Jules. If you are having symptoms of vascular compression it’s best to use your time, energy and money to pursue surgeons who do that type of surgery. The last thing anyone wants is to have to have a revision surgery.
Thank you and yes, that’s for sure. First I need a diagnosis and then I need to find Drs if that’s required. They need to be specialists and know about ES and hopefully take insurance. I find it crazy that some DRs are charging cash for this. Who has that kind of money laying around. It’s very sad.