I was just in a meeting with Dr. Ryan Osborne from Los Angeles for a second opinion about my stylogenic jugular vein compression previously diagnosed by Dr. Kamran Aghayev.
Dr. Ryan Osborne also believed I had Eagle syndrome, similar to Dr. Kamran Aghayev.
During my consultation with Dr. Ryan Osborne I told him about the fact that Dr. Kamran Aghayev recommended C1 transverse process shave in addition to styloidectomy.
However, Dr. Osborne did not believe a C1 transverse process shave was necessary, contrary to Dr. Aghayev’s thoughts on the matter.
Is this simply a difference in surgical experience?
What do you make of this?
Furthermore:
My neurologist in Norway just shifted up another gear and is now looking to refer me to either vascular or neurosurgery as of today to get a treatment plan on the table.
Other members who have seen Dr Osborne have discussed C1 shaves with him; he doesn’t feel it’s a good thing to have done & that a styloidectomy is enough to give space to the IJV. For some people this is fine (my IJV compression was purely caused by the styloids so surgery was successful for me), but we’ve certainly seen some members whose compression is largely caused by the C1 & just having styloids removed isn’t enough. Dr Osborne has done many successful surgeries, and does remove the styloids close to the skull base, but isn’t one of the experienced VES surgeons; those doctors will check that the IJV is flowing well, & often remove any other compressions, like soft tissues… Some doctors believe that C1 shaves can contribute to instability, but other doctors disagree, and we’ve had mixed opinions from members so there’s no conclusive answer!
So unfortunately it makes for a difficult decision as to who you believe, and which surgeon you feel most comfortable with. We’ve had other members who have seen the most experienced VES doctors in the US & they don’t always agree on what surgery is needed! The trouble is , if you opted for just a styloidectomy & no C1 shave, & it wasn’t enough, then it’s going to be really hard to get a revision surgery done & scar tissue could be a problem…
Difficult choice!
YES! I hope they will have the knowledge & experience to help you @Rehri! It would be so great for you to be able to have surgery “at home” & not need to travel.
Please let us know what you learn when you see the vascular or neurosurgery specialist. I’m so glad your neurologist has finally grasped the gravity of your situation.
