Hi there friends, little update after surgery. I had my 3 month checkup with Dr Hepworth after my styloidectomy and jugular decompression surgery. He says there is still a kink and thinks it’s due to a muscle spasm so I need to work on getting that to release. In the meantime we will plan on a check up appointment in February and he would like to get me on the Hawaii schedule with a doctor that he teams up with in May for a transverse sinus stent. I’m wo during if someone has this doctors name so I can start working on seeing if my insurance will cover him and in Hawaii? Has anyone had this problem also? And if so can you tell me a bit about how the surgery and recovery went?
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The doctor who’s name you want is Ferdinand Hui - https://www.queens.org/providers/2225/ferdinand-k-hui/
I think someone on our forum has had a transverse sinus stent, but I couldn’t find the discussion. You can use the magnifying glass icon in the upper right of this page & type in transverse sinus stent & scroll through the discussions that come up to see what you can find.
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Thank you so much! I appreciate your response
He said the exact same to me. That my jugular was now spasming. I do not know why he thought that. For what its worth, he told me originally has well my transverse sinuses would need stenting. That was not the case. You do not have to go all the way to Hawaii if a stent is needed. You will need to get a new cerebral angiogram/venogram as everything has changed after surgery. There is no way around that if he thinks you need a stent. Hopefully he ordered this for you prior to your surgery with him so you can see the difference before and after. Its done in the hospital and not fun. He usually recommends just a few interventional radiologists to do it, one being Hui but I know how long the wait list is to see him, but he does phone consults. I had mine done in NY. I now have to get a new one as surgery was not helpful and I am still very compressed on surgery side. I hope you got post imaging as well and not just his ultrasound. My post op imaging showed my issues. I do not know where you live but Hawaii is not easy to get to and there are other options available. Be sure to get multiple opinions on any stenting as once you have a stent, theres no going back.
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I’m glad that he’s still helping you and has a plan, @Brandy 's suggestion of getting another opinion at least sounds sensible as like she says, a stent is permanent.
I might be wrong, but I thought Dr Fargen in NC also worked with Dr Hepworth & does stents, but that might not be any easier to get to than Hawaii?
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