Hello all. This is my first post and I apologize if it's long. Some history: I'm male, 39 generally healthy, other than having eczema. I eat low carb, few sweets, low to moderate alcohol consumption. I'm thin, not overweight at all. Don't take any meds, other than topical steroid cream for the eczema and that's just occassionally.
I'm not sure I have ES, as I'm still going from doctor to doctor to try to figure out what's ailing me. I started noticing that I was having a "twinge" or weird sensation when turning my head to the side and swallowing or talking. I told my dentist back in February, and he said if it got worse, he could refer me to an oral surgeon, but didn't see or feel anything.
In early July I woke up with what I thought was a sore throat. It feels like I have a pill or vitamin stuck in my throat that I can't get down.
I also noticed that my mouth has been very sensitive. Salty things are almost painful and I have a funny feeling and taste in my mouth all the time.
I asked a friend (endodontist) and his wife (orthodontist) if they'd ever heard of anything like this. She told me the turning your head thing can be a sign of ES, but that it was rare, and that metallic taste is often a reaction to medication or can be something like an abscess or gum disease. I don't have either.
I went to my general practitioner about a week after I started having difficulty swallowing. They did a strep test (negative), then after it didn't clear up in a few days gave me antibiotics and oral steroids, which didn't do anything.
During that time, I developed a severe pain on my tongue. About halfway back on the right side, felt like someone was cutting it. After a few minutes, it would go away. That happened intermittently 3 or 4 days.
They also said it was likely GERD and started me on nexium. I never felt any heartburn or reflux, until I started taking the little purple pill. They booked me for a GI doc, which I will see later this week.
It seems like it's worst when I wake up in the morning (I sleep on my stomach). So I'm not sure if that supports GERD as I'm horizontal.
I saw an ENT. He had a barium swallow fluoroscopy done. Everything normal. He looked at my vocal cords with a flexible light/scope and didn't see anything. He agreed I should go the GI next. I asked him straight out if it could be ES, as a dentist had mentioned it to me. I have no idea what his experience with ES is, but he reached in my mouth and pressed way back somewhere near my tonsils with his fingers and pressed good enough to make me gag. He said he didn't feel the styloid. I didn't think to ask what other test he could do to rule it out.
So now I wait. I hope I get diagnosed with something, just to know, but I'm afraid to find out. If the GI doesn't have anything, then I'm not sure where I'll turn. Thanks for letting me vent. I welcome any thoughts or ideas.