I’m so sorry that you’re feeling so bad @BabzieAM , the symptoms of ES can be grim and on top of that having to fight for a diagnosis is awful. Feel free to talk about how you’re feeling as we do understand on here and many have been or are in the same position as you. Have you explained how low you’re feeling to your GP? If you do feel suicidal please think about getting help, there’s info about that on here:
Suicide Hotline Numbers - Support - Living with Eagle
Help for suicidal thoughts - NHS (www.nhs.uk)
We do have other doctors on our list but Mr Axon and Mr Hughes are the doctors that members have seen most & seem to be the most experienced. Mr Hughes seems to be doing more surgeries, Mr Axon has got quite specific criteria with who he can offer surgery to (I think that it was maybe @Warrick who posted that recently? Unfortunately because of NHS waiting times quite a few of our members have seen doctors privately, it’s so frustrating…
Out of the two, I would think maybe Mr Hughes would be best option, and he’s closer to you too.
I hope that you can get to see someone; if you’ve not seen @inky 's post have a read as at least you might feel less alone:
5 years of symptoms, 18 months off work - vascular Eagles in the UK - General - Living with Eagle
Sending you a hug and thinking of you 
