Update & Questions

It’s frustrating that you have to wait until January for your appointment, but a few members have had surgery with her and spoke well of her:

Dr. Teresa Chan-Leveno surgery 7/5/22 and background - General / Eagle Syndrome Stories - Living with Eagle

Saw Dr Teresa Chan in Dallas today - General - Living with Eagle

I’m not sure how experienced with vascular ES she is though, I just wonder given your tricky position of your styloids if you wouldn’t be better to see one of the doctors more experienced with VES, but I think you said that would be difficult, or have I got that wrong? That’s certainly something to ask about at your appointment, if she’s able to cut the styloid back high enough to ease the IJV compression?

Certainly if the exercises are making you feel dizzy I wouldn’t do them, it sounds like it could be either causing the styloid to come into contact with one of your carotid arteries, or otherwise the vagus nerve.

It is difficult when you have other medical issues going on to work out what is being caused by what, and sometimes we don’t know until after surgery & seeing what resolves… IJV compression can cause intracranial hypertension, which can cause brain fog as @Rosie says, and some members feel that it’s caused cognitive impairment, headaches, dizziness/ off-balance feeling, pain behind the eye (carotid compression can cause eye pain too) & also head and ear pressure. I’m sure others have mentioned internal tremors too. So as well as the symptoms like swallowing glass sensation, it could well be that your styloids are very much involved with your neurological symptoms too.

I don’t know anything about the EMST and IA breathing, but from a quick look I wonder if it could increase head pressure temporarily like the valsalva maneuver? That isn’t great if you do have IJV compression & head pressure from personal experience!

It’s good that your PCP is supportive, I don’t think that there’s really any other testing which would benefit you as your scans show pretty clearly the styloids… Blood thinner medications can help with some of the compression symptoms, it depends how badly this is affecting you, and what other meds you’re on, whether they would have a negative interaction with anything else you’re on?

So probably best to be guided by your body with the exercises, and take it steady :hugs:

2 Likes