Vascular priority among surgeons

@contactsiri - If you don’t have hypermobile Ehlers Danlos Syndrome or some other form of tendon/ligament compromising syndrome, the likelihood of having C1 shaved causing CCI is much lower. Your vertebrae are tightly bound to each other by tendons & ligaments & also closely surrounded by muscles that help hold everything in place & stable. Thus having the transverse process shaved off C1, even on both sides, typically won’t cause that vertebra to become unstable because it has such a great support system from the tendons, ligaments & muscles around it.

Here’s a video that’s about the ligaments that should be encouraging for you:

& a quicky visualization of the many layers of muscles that support your spine:

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I am accidentally flagging posts. I was trying to bookmark replies. I apologize.

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@contactsiri - I don’t see that you’ve flagged any posts, so if you did, you got them unflagged before our system picked it up. Clicking on the heart symbol at the bottom of the text box just provides input for whoever posted the message in that text box.

You may have already discovered this but you can bookmark posts by clicking on the 3 dots next to the “reply” button. The bookmark image looks like this:
Screenshot 2026-10-06 at 8.41.27 PM

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Thank you. This is encouraging. You all are so helpful. I just read a post that gave me more to consider. I found it helpful. I had asked Dr. Osborne if he had a neurovascular or neurologist in the surgery room and he does not. I understand his perspective, however, I would feel better with more than him in the room…@MGORNEAU had excellent insights based on her experience for me to consider. Im hoping an East Coast doctor will be the opportunity that comes soonest. First Bite Syndrome and facialparalysis are terrifying to me. You are all so courageous. Goodnight.

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Can I ask you how did Dr. Liu diagnose the acurate foreman as being the problem , was it through Catether angiogram of he vertebral arteries with head turning left/right to look for stenosis there ? My daughter has a curved incomplete acurate foreman but this test didn’t show any problem. Trying to see what next step should be after ijv decompression hasn’t relieved all symptoms. Thank you.

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I’m having a bilateral styloidectomy decompression and C1 shave with Dr Aghayev next month. I’ll let you know how I go.

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@Shauna , the belief is that this rarely causes symptoms, but who knows if it’s like ES where supposedly elongated styloids don’t cause symptoms! Is it under-diagnosed like ES?! I’m sorry that IJV decompression hasn’t relieved all her symptoms…
@Sascampbell I hope your surgery goes well with Dr A :folded_hands:
@contactsiri first bite can be a problem after surgery, but doesn’t always happen, & usually if it does it’s not too bad and shortlived…

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Thanks @Jules. It is mind boggling…that the body can have several compressions going on at the same time as ES, like the acurate foreman, thoracic outlet sydrome, subclavian steal syndrome, may turner and nutcracker compressions and then leaks on top. Wish it was easier to navigate for patients.

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@Shauna Dr. Liu used imaging software available to him at Cooperman Barnabas to evaluate my arcuate foramen. During my consult he was actually skeptical that it was causing the problem. He told me he wanted to review everything with the imaging software and then reconnect with me in about two weeks to go over the risks before deciding on surgery. Three days later, I got a call with a surgery date, so whatever he saw on that review was clearly enough to change his mind.

I had a DSA with venous manometry the day before surgery. It did show pressure gradients, but it did not show a blockage. The study was also only done from C2 upward, so it did not tell us exactly what was causing those pressures. Importantly, the DSA/VM was used for additional diagnostics and surgical planning, it was not what determined whether the arcuate foramen surgery was necessary.

I’ll be two months post-op on 10/11, and the “baseball bat bashing me in the back of the head” pressure is gone. The pressure behind my eye is not gone, and I still have lightheadedness. Dr. Liu had noted before surgery that I still had IJV compression at C1 and that a C1 shave might be warranted depending on what symptoms remained afterward but that the arcuate foramen took precedent. I could not have agreed more!

Based on the symptom resolution I’ve had, I feel very confident that de-bridging the arcuate foramen was a solid step in the right direction. I’m definitely not looking forward to potentially needing another surgery to decompress the IJV, but the symptoms that remain are consistent with IJV compression. :frowning:

A consult with Dr. Liu is $500, so it may be worth reaching out to his office. I would be very specific that you are requesting the consult for evaluation of the arcuate foramen, not for Eagle syndrome.

When I contacted him, I had already had bilateral styloidectomies, and the arcuate foramen was a separate consideration that came up afterward during a consult with Dr. Aghayev.

If you proceed, they will most likely send you the Eagle intake form. It is long and very detailed. I filled out every section completely rather than referring them to another question, and I was very specific throughout of my symptoms, even if it was repeated 10 times.

The reality is that Dr. Liu was not convinced at first that it was the issue. I had to be very blunt that my consult was specifically for the arcuate foramen and that I wanted that anatomy reviewed. He then took the imaging back to the software available to him at Cooperman Barnabas, and whatever he saw on that review was enough for him to feel surgery was warranted in my case.

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I am almost 2 weeks now from VES with a c1 shave with Dr. Cognetti and Dr. Heller. So far, I feel like they did a great job. My Jugular vein would totally close when I turned my head in certain directions. I have had no major issues since the surgery and would really recommend them. The hardest thing is to get an appointment. You will need to send your scans to him. Appointments can be 6 months out or more but they will put you on a cancellation list and I got in much sooner. Hope this helps.

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Thank you so much. So much. I know it takes time to type all of this. Your detailed reply is so helpful. I didn’t have a good experience with Dr Aghayev free consultation. He didn’t mention my styloid but Dr Osborne saw it clearly… I’m utterly overwhelmed and downtrodden. I’m almost 95 percent bedridden. I’m exhausted and don’t know what to do. Dr. Aghayev did not use 3D software and focused on my C2-C3 C3-C4 which are an issue but my symptoms I am confident are so severe that something else is going on. I don’t know what to do and am trying to figure out how to raise money for surgery. I might try to find someone in Maryland.

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Im trying. It’s hard to find help. I had the free consultation by Dr. Aghayev. He didn’t use 3D software so couldn’t look at my styloid the way Dr Osborne did. He instead focused on my spine and said my system are from my cervical spine and I need fusion surgery. I disagree. Ive had two spine surgeons evaluate my spine and images and said my symptoms don’t make sense for the spine issues I have. I was surprised Dr Aghayev didn’t use 3D software. I was able to send my images to Dr. Liu and hope I can get a telehealth appt before December. I need to keep searching for doctors who can help me. I’ll keep everyone posted and also try to send 3D images to you.

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Thank you. Im scared about the C1 shave and CCI but have received info from @Isaiah_40_31 about that. I’m very happy for you. I can feel relief for you. I don’t think I can make it 6 more months. Did your insurance cover your care?

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Yes, but I’m on Medicare and have a good secondary insurance. Dr. Heller is a neurosurgeon and did the C1 shave. I haven’t noticed any instability just some normal pain.

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That’s excellent news. I’m very relieved for you. Thank you for your time and reply.
Is Dr. Heller at the same office as Costantino?

Dr. Heller works as a neurosurgeon with Jefferson Hospital. We works with Dr. Cognetti. They are not in the same office. Dr. Cognetti is an ENT.

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@contactsiri - Dr. Costantino is an ENT surgeon who operates w/ Dr. Tobias who is a neurosurgeon.

As @bs9652 said, Dr. Cognetti is an ENT surgeon & the neurosurgeon he operates w/ is Dr. Heller.

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Thank you. I sent my intake form snd imaging to Dr. Liu.Today I FedExed my inaging to Dr. Cognetti. Right now he is booking consults for JANUARY! That’s well before surgery. I’m bedridden and dizxy/head presdure 34 hours a day. The hospital migraine cocktail via IV evety 6 hours never completely took away the head pain. now. My hope is that I hear from Dr. Liu very soon. I will try to get my info this week to Dr. Costantino. I really don’t want an unnecessarily aggressive doctor. I’m concerned about my job and livelihood and praying God makes a way with the right doctor soon. Dr. Liu and Cognetti are closest to me. I’m comforted by the experience @MGORNEAU had with Dr. Liu. I can’t remember now if Cognetti does consults via telehealth like Liu, but I hope so/think so.

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@contactsiri - Good job getting your information to the doctors you want to see. I hope you get a reply from Dr. Liu’s office very soon. :folded_hands:

Dr. Cognetti must be opening up more appts for ES patients. Last we heard he was booking initial consults in April. I’m so glad he is booking sooner now! He does telehealth appointments so you won’t need to travel for an initial consult with him.

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Thank You. I will be getting a ppo next year. Good advice. My prayer is i get surgery this year but I still want a ppo. You’re right.

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