When I went to Mayo Clinic they performed a CT of my neck. The radiologist report says:
Conclusion: Left stylohyoid ligament calcification is a potential etiology for the patient's pain, as in the setting of Eagle's syndrome.
Findings: Negative for abnormal soft tissue mass. No cervical lymphadenopathy that meets measurement criteria for pathologic enlargement or shows evidence of nodal necrosis. Suprahyoid and infrahyoid fat planes of neck preserved. Thyroid gland heterogenous attenuation compatible with ultrasound findings of nodules. Calcification along the left stylohyoid ligament.
The rheumatologist who ordered it wrote this in her report after looking at the CT:
In workup of that, she had a CT of her neck done. Interestingly she had a left stylohyoid ligament calcification. This could be the potential cause for the neck pain as in the setting of "Eagle syndrome." She may need a referral to her local ENT to see if that is something that needs to be surgically treated.
Also at Mayo, the pulmonologist wanted my local ENT to perform a videostroboscopy to evaluate for vocal cord dysfunction.
I went to my ENT, who said he could evaluate and treat for Eagle's. I gave a report of that visit in a different post here. When I left there, I felt confused, so I called the nurse to ask what the doctor thought once he looked at my medical history and the CT scan. Did he definitely diagnose Eagle's?
(Keep in mind he ordered videostroboscopy to evaluate for vocal cord dysfunction)
The nurse just called. She says he is not going to diagnose Eagle's based on the exam, the CT scan and the medical history. He said there is more to do in the work-up before he concludes it is Eagle's. He said the next step is the videostroboscopy. I asked the nurse if she was telling me the videostroboscopy is necessary to diagnose Eagle's and she said it was ONE step in diagnosing it. I explained that I thought he ordered it to evaluate for vocal cord dysfunction. She said it will do both.
My question for the group here: Have any of you heard of using videostroboscopy to evaluate for Eagle's? Isn't it normally to visualize INSIDE the trachea, especially the vocal cords?
Does it seem to you that I'm getting the run around?
Kathy (aka WillisWay)