I’m sorry that you haven’t got an answer to your pain, back to the drawing board for you…there is a section in the Newbies Guide about other possible diagnoses:
As you have mainly facial pain- sounds like the Trigeminal nerve and/ or the Facial nerve- you might find the Bens Friends Facial Pain Group helpful; they have more info on medications, nerve blocks etc which you might find useful, here’s a link:
https://www.livingwithfacialpain.org/
I hope that you can get some treatment for your nerve pain and be able to get back to living, thinking of you 