I feel like a sinking ship. Staying afloat is a strugle from day to day, some days being easier than others.
Today is a bad day. Throat pain, headache and incredable fatigue. I don't know what to do so I will do nothing and hope tomorrow is a better day.
Hey Dyan,
I'm really sorry to hear you're struggling so much, I can sympathise and I wish that there was something I could suggest or a wand I could wave to make this better for you :( I just hope today has been better for you and that you've found some relief.
Much love to you
Gracie x x x
Poor bugga
It's really hard isn't it
And that feeling of "i'm gonna bust into tears any second" and sometimes we do.
Because it's such a rare condition, there's no support out there.
There's not anything out there !
When my throat gets really sore i suck on icy-poles.
I buy the bulk cheap brand ones from coles or woolworths.
The cold from the icy-pole numb the pain and try to swallow on your effected side.
I've recently put myself on Vitiman D, Womens multi's, C and iron ans i was boarderline anemic.
I believe the vitimans have helped me feel stronger to deal with my ES.
Good luck darl and try to relax.
Eat icy-poles in bed , take some nuerophen or panadine forte and have a nice sleep.
That's what i do.
Does anybody ever get like skin peeling inside their mouth on the effected side?
i haven't had it for a while now, just curious
Tc and be strong xoxox