I did the colonoscopy and gastroscopy today. They found a polyp, at the same place where my mother had bowel cancer (her cancer came from a malignant polyp in the colon near the appendix). I have to wait for the cytology results for about 3 - 4 weeks! They also saw that I have gastritis in the lower abdomen. Otherwise everything was okay;) despite for the swallowing tissues above my larynx/vocal cords but for this I must see an ENT.
The doctor also thinks I have silent reflux.
The doctor was very nice and helpful. It was the best doctor's appointment I have had for a long long time! Because....the gastroenterologist knows an ENT specialist who maybe is interested in Eagle's syndrome.
He has already contacted him and I hope the ENT wants to see me soon for a medical examination :). It is an experienced physician who had worked as a neck and head surgeon in Norway. Lucky me who found this stunning gastroenterologist who is trying to help me find a doctor for Eagles syndrome :).
Now I pray to God that in the intestine polyp is benign. I'm also waiting for the results of gynecological smear tests and a biopsy of a lump in the breast. Hope everything turns out to be benign!
God bless you all! / Alexandra
That is wonderful news to hear you have a caring doctor who is willing to help you. I pray all your test come back negative too. I hope the blessings keep coming your way.
Happy to hear that you had the polyp removed and hope it is not cancerous. Also, stupendous news that the gastro may be able to find you an ENT.
I talked to my doctor yesterday, but my results have not come back yet. Not one of them...I am still scared because of the polyp and still struggling with my other health issues as well ...
I have a new ENT appointment next Wednesday för a swollowing test ( I will try to swollow different types of liquids and food while the doctors are looking in my throat with a smal camera ) because of my dysfagia (which I have för the last 7 years). But my swollowing problems are "between the tongue and the phariynx" - so I don't think that a swollowing test will give any answers...
I also have an appointment to a new ENT (september 26) who worked with head and neck surgery in the past. I don't know if/how much he knows about Eagles, I got this appointment with the help of my gastroenterologist who knows this doctor and he contacted him :).
If I feel that this doctor don't has any experiance with this kind of operations I don't know what to do. I am not a very brave person and don't know how to deal with this doctor if he is getting rude or arrogant like some of the other docs I have met in the past.
Still, I have a very big problem with an area below my adam's apple, a tender point on the "rings" of my larynx. No doctor wants to deal with it..I think I have to have a laryngoskopi to see what is going on there. I have this tender point hurting since december last year and it is a very very uncomfortable feeling...can the Eagles syndrom affect structures in this area too?
My inner jugular vein is also very extended on one side and can not be seen on the other side on the CT-scan. Should I ask for an angiogram? I already had 3 Ct's with contrast in the past few months, is it save to have another one? Could an ultrasound be a better option?
Big hugs and stay strong everybody. It feels good to know we are not alone with this terrible disease. This forum gives me a lot of "psykological relief" and the strength not to give up. Thank you!