1 year (almost) post right sided styloidectomy/C1 resection update

@Danielle1 I did actually start with AO with Iain Smith 3 years ago and had the full AO treatment. Unfortunately it didn’t help

I actually was given multiple bags of fluid post op. Not sure why, as I was drinking quite quickly after surgery. I was kept overnight and was given fluids up until about 2 hours prior to discharge.

Thanks for responses. I have asked not to given fluid bag post op for long/at all. D :slightly_smiling_face:

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Sometimes post op fluid is necessary to help elevate blood pressure. I had surgery earlier this year & for some reason my bp dropped dangerously low post op. I was on IV fluid for 2 days. I needed to be up & walking but couldn’t even sit up straight w/o nearly passing out. That has never happened to me before, & I’ve had several surgeries.

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Thank you very much. Will PM you asap :slight_smile:

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I hope you feel better by now!!! If I should know this from your posts and missed it, I apologize.

If you haven’t had success yet to self-realign your C1, I might have at least one tip I could share by video with you.

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I’m doing reasonably well but do still struggle with the upper neck pain. I’d be interested to hear your C1 realignment technique

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The C1 restructuring technique will not help in your case. Treat thrombosis of the right transverse sinus with medication.
As for me, you didn’t have significant compression of the IJV, it is there, but it’s small; it’s debatable whether it could have had a significant impact on the volumetric outflow (Honestly, my opinion is that I see on the CT images at the very beginning, at that moment, you not have compression ). And even on the right side your IJV is better than on the left, on the left side it is compressed more strongly. But again, this is not significant compression and it is debatable whether it could affect blood flow. 3D reconstruction may not be accurate, transverse sinuses. I looked at the axial and sagittal sections of the MRI and yes, your right transverse sinus is tightly thrombosed (an error in diagnosis and it is unknown whether it brought any benefit surgery.)
With thrombosis (arteriosclerosis, infections, cholesterol, sugar). That’s why your IJV did not open immediately after surgery. Well, there is good news, she has filled up more, due to the blood thinning pills, perhaps the clot will resolve over time. They’re operating on a blood clot, but it’s still dangerous.
In your situation, the transverse sinus thrombus is to blame. Perhaps, at one time, the dislocation of the atlas was stronger and the IJV on this side was more compressed, and the transverse sinus, due to low blood velocities, turned into a sump, a reservoir for cholesterol plaques, possibly an infection-disease or simply arteriosclerosis.
This is a general idea, not for your case.
Your atlas is not severely dislocated. Do MRI arteriography and venography of the head and neck, rule out the presence of stenosis and arteriosclerosis. As Doctors Peter Nakaji and Michael Lawton wrote and as I think based on hydrodynamics, it is necessary to remove compression from the non-dominant side. Why ? Because the resistance of the weak side (non-dominant side) is greater, and when you release the dominant side, the blood flow will increase, but on the non-dominant side it will decrease (because fluid, like electric current, flows more along the branch where the resistance is less) and in the end you further reduce blood flow on the non-dominant side. As a result, you get headaches in that hemisphere, etc. In general, I think that if there is significant compression on both sides, then you need to operate on both sides after some time. Why ? Because after 1-2 years, the distribution of blood flow will improve and the veins will begin to change their sizes and in the end, on the one hand there will be a small deficiency. Of course, there won’t be any special or strong symptoms, but still. only if you have poor metabolism and are prone to arteriosclerosis, the transverse sinus may gradually, over a couple of years, thrombose due to low speeds. And the risks of a second operation are probably greater than mild residual symptoms. one working IJV is quite enough.headaches can also be due to disc herniations (protrusions) that put pressure on the spinal cord of the cervical region, but this is easy to see on an MRI. But the accompanying numbness of the hands. It is possible, but unlikely, that the body rebuilds the vascular system of the head (some vessels narrow and some expand, distribution of blood flow), bypass paths are not needed, and builds new ones, perhaps this is why the head hurts. Well, there are many more possible reasons, thrombosis, arteriosclerosis, you need to do an examination, multiple sclerosis (by the way, Paolo Zamboni vascular Italian doctor), ischemia, tumor, Chiari and much more.
image
if this picture was taken after surgery, then yes, there will be an effect from the surgery. But if this picture is before the operation, then you did not have compression at that time.

and even in the next picture, before, strong compression is also not visible
image

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Treat transverse sinus thrombosis with medication. thinning drugs.Proper nutrition, walking, fresh air. What’s in your mouth on the MRI, I assume you have a false tooth, metal, or something else.
this is my Compress IJV almost without Eagle syndrome(basic large transverse process С1 ) in triangle atlas C1 and digastric muscle and Musculus stylohyoideus, TOS and hyoideum bone identify on your own despite doctors’ diagnoses

For C1, halotraction or surgery. You can try Cervical Collar Rigid and sleeping on your stomach as I described. Compress IJV almost without Eagle syndrome(basic large transverse process С1 ) in triangle atlas C1 and digastric muscle and Musculus stylohyoideus, TOS and hyoideum bone identify on your own despite doctors’ diagnoses - #6 by Filatov

I noticed the “before” in the picture. The stylohyoid process was broken, I don’t know, maybe they tried to correct the position of the atlas, chiropractors/physiotherapists and then the stylohyoid process was broken, or there was an injury. Is it broken? because further on the process is thick.therefore, on the CT scan, photo - “before”, the dimensions (diameter) of the IJV in the atlas region are normal.Then everything comes together, before this CT scan you had strong compression on the right, this can even be seen from the position of this broken stylohyoid process. There was strong compression and plaque accumulation, thrombosis gradually increased. So, indeed, my theory based on the fundamentals of hydrodynamics is correct. Now you need to get rid of thrombosis, try medication.
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And yes, the surgical operation was useful and effective. The stylohyoid process could have fused at any moment, healed, and put strong pressure on the IJV again. Although the outflow was already small due to thrombosis of the transverse sinus. Now you need to be treated for thrombosis, this is also quite difficult. Once the thrombosis resolves, you will feel great.

A great big thank you for being so generous with your posts and sharing all that precious infos and experiences here! :pray: :pray: :pray: That`s been a big help for me, and I guess, for many others too…
I hope you are doing much better now and the concervative measures have really helped you.

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Thank you so much for that comment, I was seriously concerning prolotherapy, now will put this idea aside.

But what I can’t understand, the place of the compression between C1 and styloid is at the place of the orange circle, whereas the vein got wider at the other place, at the blue circle, and got thinner at the compression site… How come? :thinking:

The vein gets thinner at the compression site because it’s being squashed between the styloid process & C-1 or by some other means at that location. It’s thicker above the compressed area because the blood is backed up there since it can’t flow normally through the squashed area because of the smaller size of the opening in the vein.

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Well the model isn’t accurate, because sucking through the straw gives negative pressure and bulging occurs due to the reasons related to the positive pressure*, so there wouldn’t be any bulging no matter if the straw is pinched or not.

More accurately it would be to describe it as trying to inflate a balloon. The bottleneck (narrow balloon’s part) gives resistance and the cheeks will puff out. But try to simply blow the air out from lungs with the mouth wide open, and the cheeks won’t bulge because there is no resistance (causing positive pressure).

*There are certain aerodynamic nuances that under specific conditions lead to the negative pressure causing positive pressure in case of various air vertexes, pulsed form of negative pressure at certain air flow velocities, quantities, and forms. But that’s not the best place to discuss about it :laughing:

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Thank you for the correction @vdm. I knew my illustration was faulty, but I couldn’t figure out a more accurate example. I’ll delete it so it doesn’t confuse anyone. What you wrote is a much better explanation (& accurate). :joy:

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This is a great explanation @vdm. As someone who has played a lot in the lab with microfluidic devices, certainly sounds about right

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The compression site is at the orange circle, right? Why after the surgery the site at the blue circle got bigger, not at the orange circle, as expected?

What a lucid example with the baloon, thank you!) But still, according to the pressure drop comparison model of M_UK, if we apply this, that would mean, there was no compression at the site of C1, but it appeared after the surgery… Given the compression site is at the orange circle…

@Irina777 - I understand your question but am not sure of the answer except that perhaps the size of the veins is somewhat dynamic/flexible to accommodate different neck positions, rates of blood flow (i.e. at rest vs when moving), etc. Maybe @vdm or someone else will have an opinion that answers your question better.

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So there can be many reasons why compression at the specific spot happens. Best is to have a look at the CT scan/MRI. Could be scar tissue, lymph node, swollen muscle, resected muscle hanging free, permanent inflammation or anything else…

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