Happy rare disease day to my fellow eagles !
I’ve seen a few people mention the all_about_eagle Instagram account run by Dr. Nils Heim in Bonn, Germany…but I think it deserves its own post. He has operated on a few of the European members and also published papers on ES. He tells me there is another article forthcoming where he will shed more light on the two eagle origins…ligament calcification vs bone hypertrophy.
He’s helping spread the word and providing good information from a surgeon’s perspective. For some of us who encounter doctors reluctant to give referrals and unwilling to read scientific articles we print for them, maybe showing them this account will help break the logjam. Let’s follow him and give him some support!