It has been a long time since my first and last post. I promised you that I would have told you my whole experience, and here I am. During these months, I underwent two surgery for my Vascular Eagle Syndrome: I had styloidectomy in Krakow with Dr Bargiel (May 2025), and c1 shaving + further styloidectomy with Dr Aghayev, Turkey (October 2025). I made some videos about everything you need to know about my story, and I’m linking my YOUTUBE CHANNEL right here https://www.youtube.com/@costantinoi4162 . Those are quite long videos, and certainly I’m not the best entertainer, but I hope you can enjoy them and find some precious information, especially when it comes to these rare syndromes. Feel free to contact me for help or info <3
Hello @Costantino,
I’m following your experiences, it’s good that you’re sharing them with us and I thank you for that.
I would like to ask you, if you have the option, to enable subtitles on your video with your experience in Turkey on YouTube, so that those of us who don’t understand English can have a translation.
Your recovery looks really encouraging for all of us and we need stories like this.
I hope your shoulder comes back.
You should consider physical therapy, as it will certainly be necessary to stimulate the nerves, activate the muscles and straighten the musculature. Such an imbalance is harmful to the spine, now it is suffering, so care should be taken to avoid injury and damage.
Great that your vascular symptoms have improved so much & that the surgery has made such a difference to you! I hope that things keep improving especially with your shoulder…thank you for the update and positivity, it’s good for everyone to see that!
Good afternoon. Did you have your awl processes removed first and there was no positive result? And in October, Kamran Agayev had a C1 resection for you. Did you feel better? and with the shoulder this post-operative delight?
Thank you for sharing your Youtube videos, @Costantino. You did a good job with them & your English is great! I’m sorry about your shoulder & agree w/ @tesla001 that getting physical therapy to help it fully recover is a good idea. Your recovery from the other symptoms very good. I’m glad surgery helped you so much.
I had the same question as @Valeriy - Did you get your styloid removed first then later go to Dr. Aghayev for IJV decompression or did Dr. A need to remove more of your styloid & do the decompression? Also, your shoulder hypotrophy occurred after surgery, or was it a problem before surgery, too, & you’re still working at helping it recover?
Hello, thank you very much! I’ll try to figure it out, seems like the surgery video is the onlu one without subtitles at the moment. I’m doing my best in order to keep my shoulder as strong as possible. As you know, nerves damage can take up to 6-8 months to fully heal, so I am defenitely happy
Hello my friend. Dr Aghayev removed also the remaing part of my styloid process, which actually was the critical one that was still pushing my IJV. Shoulder weakness occured post-op, and I was aware of this possible complication, but frankly it is not a big deal. You have to get used to it, it’s just annoying.
First improvements were noticable after 2 weeks post op, and I’m getting better day by day, not gradually, with ups and downs. With that I mean that the headpressure is still here but changes in inensity and pattern, which is fine with my everyday life.
Thank you for your reply, @Costantino. I’m glad your shoulder weakness isn’t bothering you too much & you feel it’s getting better & stronger. It’s also good that you feel changes in your head pressure & that it is also getting to be less.
Nerve recovery can take up to 18 months or more. I’m telling you this because I don’t want you to worry if your shoulder is still a bit weak at 8 months after surgery. Given more time it will likely get better & better.
