That’s so frustrating getting a report like you have & Mr Axon still being unwilling to operate! I wish I could give you an answer about who’s best to see but as you say neither Mr Timothy nor Mr Hughes would likely do the styloid & the C1 shave; we’re a bit stuffed in the UK! @KoolDude has had styloids removed, and then a C1 shave with Mr Timothy but is still having some issues, you could message him about his surgery experience…
@vdm has posted lots of info & links about neck, shoulder and back muscles and how posture can affect them, with links to pt videos which you might find helpful, have a look at this discussion:
Thinking of you 