I’ve only met with one surgeon so far who is familiar with VES: Dr. Peter Costantino (appears here sometimes as Constantino but correct spelling is Costantino). I had the ES diagnosis when I saw him, and based on my symptoms he suspected IJV compression and sent me for MRV. I now know I have bilateral IJV compression. I have a second consult with him next week and will know more then … happy to share. He does approx. 8-10 ES surgeries/year, external approach only. He also advocates for removing one styloid at a time.
Of note, everyone on his team (office and clinical) with whom I’ve had contact has been incredible so far.