Hi guys. Yesterday I went to Hamburg to see Dr. Felix Blake at the Universities clinic of Hamburg. He seems to be a very cool guy and the only one who removes styloids fully until skull base. He has done many surgeries so far with mixed results. He told me it is a 50 / 50 chance. Some benefit greatly some do not have any improvements. he does not have any experience with EDS patients. He does not do a C1 shave. He only does styloid removal until skull base as mentioned. The only guy so far here in Germany. He also mentioned that he might stop doing Eagle surgeries sometime in future, since this surgery has such m ixed results, but as for now he still does them. All in all he seems to be the best guy to go to here in Germany regarding this matter.
@Matyas - Im glad you’ve found someone to do your ES surgery who is experienced & will cut the styloids back to your skull base. We’ve had members who had good results with their IJVs re-opening just by have the pressure of the styloids taken off of them. That may be what you’ll experience too.
If you decide to have Dr. Blake do your surgery, please let us know your surgery date.
Hi. I thought he was the best option here in Germany so far, but I would really like to see Dr. Hepworth. Dr. H has much EDS experience and does a C1 shave as well. Alyson his assistant told me in the zoom call that I would need a shave as well. I hope and wish that I can come and see Dr. H. It is basically the financial part which needs to be sorted somehow for me.