Thank you so much, Eagle! That’s so sweet. Considering I have anxiety about hospitals and medical things (mainly just the lack of control!) I’m nervous but doing really well. I did take some of my as needed anxiety meds tonight and I’m sure they are helping, but I’m feeling good and even excited. The day is finally almost here and I’m so hopeful. Compared to how I felt before the venogram/angiogram (that really freaked me out for a variety of reasons) I am surprisingly calm because I know I’m in good hands.
I had to stop the plavix two weeks ago, and that has been very illuminating. I feel so awful without it. I had several episodes where I was doing very mild/moderate exercise — a leisurely bike ride and gardening — when I felt so dizzy and my head was throbbing. It was so frustrating to be experiencing that again and I just cannot live my life that way! Have you found any relief from any medications or treatments? Hang in there!
I will be keeping everyone updated on my recovery and I’m hoping for the best!
I’ll be praying for you & Dr. H tomorrow! Will look forward to hearing how everything goes & especially I’m hopeful that you’ll notice symptoms in retreat ASAP after surgery.
Hi there Blossom! I hope that your surgery went well and that you are resting up and healing well! I think the Diamox and Plavix are helping some, but I am still so miserable. It is hard to tell but I feel like I would feel worse if I went off of them though. I am really looking forward to hearing your progress! Sending hugs!
I am SO glad I came across this post of yours, I feel like I have the exact same issue! I haven’t seen anyone mention this connection with the jaw before. My face feels like it’s going to explode after I chew or open wide, even just letting my mouth hang open will trigger symptoms. And when I lay back and my jaw falls back it also triggers intense symptoms, or sitting at my computer with my head forward. I really thought it was TMJ at first, but my joints are fine. I have a 4.3cm on my right and 2.7 cm on my left. My jaw feels like it’s stuck to my styloids, and doesn’t move well. Anyways I will bring this up with Dr Hepworth, but I am glad that someone else experienced this type of ES.
@kline , I’m glad that you found JustBreathe’s post helpful. Sadly she passed away a little while ago, she is very much missed on here as she was so supportive of others and had so much knowledge, despite having considerable health issues herself
Hi @Jules, I have been reading up on this old thread and noticed that you mentioned you had to avoid flying because of your IH. I am having terrible head pressure pain, moving my head even the slightest exacerbates it at the moment, however I am in a predicament as a specialist is willing to see me urgently, but is a 1 hour plane ride away (9 hour drive). I haven’t agreed yet as Ive been wondering if I will be able to cope with the plane pressure. I’m guessing not? Or that it could be very dangerous for me?
Keen to hear if what you think? Or if anyone has flown with vES and heightened head pressure symptoms?
Thank you so much
@BraveKat I had elevated head pressure and flew back and forth from CA to AZ (about 2 hours) without any problems. After flying the pulsatile tinnitus was quite a bit louder for a couple of hours and then back to baseline. Hope that helps.
I wasn’t worried about it being dangerous, more the head pressure/ pain, flying set it all off again…if I had to fly for treatment I would have been able to, but not for a fun trip!
