I have an idea to share with those who have first bite syndrome. Doctor told me that FBS symptoms may be improved if I drink water, then massage the area of the parotid briefly, THEN eat immediately afterward. Seems to be working (and makes me look ridiculous while I’m rubbing:).
Whatever works! I assume you drink & massage before eating as in the bite you take after drinking & massaging is your “first bite” of the meal. I’ve had FBS for 4+ years & have found that if I keep myself very hydrated (80-100 oz of water/herb tea per day) then my FBS symptoms are less intense or non-existent. I tend to only massage my parotid gland when I have symptom flares. Your order of doing all this makes much more sense than mine i.e. treat it BEFORE it happens not during or after.
That’s good info, thanks for sharing! I get the odd bout of it still, 4 years later also. Seems to be sweet stuff that sets it off.
That’s quite interesting. My FBS is mostly triggered by salty foods. I’ll see if the massage helps.
I am 6 weeks post op and I have FBS. I can have the pain and tingling even before I put the food in my mouth. Sometimes the pain is sharp but mostly its a “softer” pain/spasm like a severe reaction to sour, though all food, and sometimes drinking liquids can set it off - not water. If I remember its going to happen I am ready. If I forget its usually a shocker.
My way to cope is:
I anticipate, answer the door and welcome it in. Then I am ready. No one really likes a visitor to pop in without some advanced warning. The painful response before putting anything in my mouth helps to prepare. Now I know what Pavlov’s dogs may have felt.
Great comparison to Pavlov’s dog and the welcoming of a surprise guest, BG! I LOVE those pics! The good news is that in most cases FBS goes away completely. In a few, it doesn’t but the symptoms become less severe as time passes. As mine has stuck w/ me, I’m finding that even five years post op, FBS is continuing to become less of a problem for me i.e. symptoms occur less frequently & are less intense. Who would have thought nerves would still be recovering this much later!!