These are the top 2 NIR in the country actively working on venous insufficiency. There was a first ever conference this January in Hawaii lead by Dr Hui, Hepworth and Fagen were there as well -Society of Neurointerventional Surgery (SNIS) Cerebral Venous and Cerebrospinal Fluid (CSF) Disorders Committee. Sadly it is this group (about 30 total) who are leading the cause for patients like us. If you can see either of these two that is your best bet in getting an exam and opinion from someone who understands and is interested in helping us.
Great you finally heard back from Hepworth’s office, what a journey for you I’m so sorry!