@Isaiah_40_31 pretty much summed it up! So ditto…
My surgery went very well, and even with the remaining swelling almost all of the symptoms of intracranial hypertension seem to be gone. I really didn’t have the nerve pain variant so I don’t have much to report on that. But it was immediate relief!
The day after my surgery I was able to sit and work with my laptop in my lap for an extended period of time (I have not been able to go more than 15 minutes in several years without almost passing out!) and I can now look down at my phone and type this post. There’s no sensation of pressure at all, my vision is almost normal and there is no brain fog. The one thing that has not changed is the constant tinnitus. So I’m thinking that isn’t caused by the jugular compression.
I’m back for my 1 week stitch removal, I stayed in Denver for the week at a fairly reasonable Airbnb. I am from OKC so we drove up rather than dealing with air travel this time of year. Plus it was considerably cheaper.
(It was an apartment/condo in centennial - which I had planned because it was close to the office. But all of my appointments this time have been in cherry creek so that backfired on me lol). And It depends on your definition of reasonable, luckily I got a new job in August that made this whole thing even possible financially. I would have had to look at alternate housing/logistical arrangements before. Between that and the super duper new insurance, I feel incredibly blessed. I think there was some sort of divine intervention on that, whatever your beliefs are.
As far as recovery, Day 3 was definitely the worst, but as of yesterday (day 5) I am off of pain meds and just on Tylenol. It really wasn’t a super painful surgery compared to some of the orthopedic surgeries I’ve had.
The nurses and surgeons were amazing, and aside from having a terrible time getting an IV started everything went super smooth. (I have tiny veins + Ehlers Danlos AND was super anxious so my veins did not cooperate). I just love Dr Hep, and my family are all big fans now.
My children are grown so that wasn’t really an issue for me. The only thing was the incision was quite a bit lower than I expected. I thought it would be under the jawline, but it’s half way down my neck. I don’t really care but it was a surprise. I will post pictures when the stitches are out and I’m on something other than my phone.
Thanks everyone for all the positive vibes and prayers! I owe so much to this group, I would still be suffering and miserably going from doctor to doctor with no answers. You guys are the only reason I knew about Dr. Hepworth. This has literally given me my life back.